Most of the material in here has already been published but there are some extra bits and pieces you might be interested in. This might be the last newsletter because future information will be published on the website. Do members feel that a newsletter is still necessary? …
Now is the time to profile some of our members. Today we start with Bernard.
Bernard lives in Nelson, is recovering from a laryngectomy and is the sage of our page on Facebook. He is a keen…
Saw this on Twitter and was amazed at how she pulls no punches about HPV caused head and neck cancer. I often say that things are worth reading but this is stunning. Moreover, it's a call for action and a lesson in how to cope.
Here is a quotation" "By the age of 25, 85-90% of people have been infected with HPV, but have cleared it. From the first exposure to oropharyngeal cancer can be as much as 30 years, for the unfortunate few who did not make antibodies against…
At last week's meeting in Auckland, we talked about the need for good communication in patient care. It is important for patients to have good quality information on which to base their decisions. In all the research about patient experiences in health care, the lack of good communication is a consistent theme. The good news is that technology can help us…
Here is a link to their wonderful newsletter. And ... we are in it.
Professor Ron Paterson spoke to the Auckland Support Group on 2 March. Here is my summary of his presentation.
One thing that stayed in my mind after Professor Ron Paterson’s talk on Thursday was his reference to the “uncanny valley”. There’s something mysterious and catchy about the term. What is this and what does it have to do with the patient experience?…
We all try so hard to get on with things after life-altering head and neck cancer treatment. Sometimes we falter and fall because the road is so hard when appearance, eating, speaking and sometimes hearing are affected. Some people find the right recipe for coping. Maybe they had advantages we didn't have; maybe they were given better ongoing support; maybe they were gifted with an especially strong spirit. Whatever, the reason, they have made a good life for themselves and we can be…
The following is a summary of the first talk at our Auckland Head and Neck Support meeting in Auckland yesterday. The theme was new directions in head and neck cancer treatment and care. See the end of the article for a glossary of acronyms.
Mr John Chaplin, FRACS, Head and Neck Surgeon
There have been big changes in the…
This can be a delicate topic. HPV is a factor in increasing numbers of head and neck cancers. HPV is usually caught by having oral sex; this can be embarrassing but experts assure us that most of us have or have had the virus and only a few of us suffer cancer because of it. HPV is the same virus that causes cervical cancer in women, a disease that is being eradicated because of the HPV vaccine, Gardasil. Many countries are introducing vaccination for boys, and we are one of them. Thanks…
Why don’t I always comply? What is compliance, anyway? Wikipedia says that, “In medicine, compliance (also adherence) describes the degree to which a patient correctly follows medical advice.”
What a great chart from the Swallows. I wish I had seen it ten years ago!
The worst side effect of radiation for head and neck cancer is mucositis. We know that “-itis” means…
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