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From Marty Doyle, Australia.

Hi There,

Well the Head and Neck Cancer Support Australia Patients and Carers Book is coming along well and the pages are filling up.

We are still looking for stories from Patients, Carers and Allied Professionals.

If you have been thinking about writing something for the book the final date for submissions is fast approaching

Our copy deadline for content is Wednesday, 19th May 2017

Come…

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Vive la e-revolution ...

What revolution?

I always like a good revolution and it looks as if New Zealand will remodel its health system in the next 3-4 years. (Maybe “revolution” is the wrong word.)

It’s all about ehealth, emedicine, lots of words beginning with e. On the Ministry of Health website is a plan to introduce integrated electronic health records by 2020, as well as other revolutionary eHealth…

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Wednesday Weekly - 3 May 2017

There’s no disputing cancer treatment is expensive, both from the medical side as well as the individual cost with loss of income ,possible home care and so on.  All the same the decision by  the British national health service to stop funding one of the key anti-cancer drugs (nivolumab-opdivo)  seems a serious…

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Hi everyone,

My name is Amy and I have just completed my PhD at the University of Auckland. My thesis investigated the psychological wellbeing of people with head and neck cancer and aimed to see whether a psychologist could help to make treatment more manageable.

My colleagues and I recently published the results of an intervention study. This study randomly assigned newly diagnosed head and neck cancer patients to receive standard care or to receive standard care as well as…

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AGM Formal Notice

Formal Notice of Annual General Meeting

Head and Neck Cancer Survivors’ Support Network

2nd Annual General Meeting

To be held at room 2, Domain Lodge, Grafton on Thursday 4th May 2017 commencing at 9.30 am.

If you have not yet registered you can do so here. Only registered members can vote. All those present at the first AGM are automatically members and do not need to…

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We need follow-up plans: my story

One of the most frustrating things about my cancer care is the lack of clear, consistent information. I have never had a follow up-plan - I don't think any NZ patient has one although overseas patients seem to. 

http://www.cancer.net/survivorship/follow-care-after-cancer-treatment/importance-follow-care

You might think I'm being ungrateful considering…

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Wednesday Weekly - 19 April 2017

Progress is being made in NZ in publicising the incidence of head and neck cancers and gaining resources to fight them. Progress still feels slow compared to some other countries though (see stories below) and there’s a long way to go – but the trajectory is definitely upward.

Meanwhile consider: A line of paint on the road holds more authority than I ever will or maybe.  It's been 82 years. Schrödinger's cat is definitely dead by now. Check it out here..…

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Education reduces anxiety

If you're like me and can't read one dimensional diagrams very well, you will find the 3D animations and videos being posted online by some head and neck cancer organisations very useful. Two groups which do this very well are Australia's Beyond Five and the UK's Swallows charity. They both make fabulous videos of survivors, while Beyond Five has some very lucid animations of…

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Homework pays off for those with lymphoedema

"All my patients get homework!" says lymphoedema expert Michele Urlich. Last week, Michele spoke to the Head and Neck Cancer Survivors' Support Network in Auckland. She explained how important it is for patients to become involved in their care. Her "homework" includes deep breathing techniques, massage and exercise.
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Weekly Wednesday - 12 April 2017

Losing the sense of taste (and probably the appetite as well) is just one of the many side effects of radiation treatment. it’s annoying, but for a chef and restauranteur it can be a major problem. However as the story below indicates things can get better. Meanwhile consider; "The customer is always right" is arguably one of the most untrue statements used by humanity. Or maybe Humans are hiding the good food from all of our dogs, and they know.
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Happy with your treatment experience?

Please share your thoughts on your recent treatment experience. This can be at any stage of your cancer journey, pre treatment, treatment, post treatment, and survivorship. 

You can take our survey as many times as you like, and we encourage you to have your family/whanau and carers share their thoughts as well. Click the link to share your thoughts.

https://www.surveymonkey.com/r/PatientNZ

 

 

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