The number of after effects of cancer treatment are many and often an on-going challenge. Lymphoedema - that swollen, floppy jowls effect - and loss of hearing are two common examples and while not life threatening both detract from quality of life. The two stories this week suggest there…
Not long to go now and we'll be back into the swing of 2018, Domain Lodge meetings included.
As you know we have had to change our Thursday meetings to first Mondays because of pressure on Domain Lodge's parking facilities.
Meetings will be at 11.30 to 1.30. Bring your own lunch if needed.
Attached is the programme for this year so far with two slots unfilled. The programme will be amended soon to include two evening meetings during…
Everywhere you go, you take the weather with you.
Neil Finn's song is so right. Yes we make our own personal environment and no we can't control the actual weather - we have to put up with it.
Although, maybe it's not too late to stop the climate changing.
Condolences to everyone experiencing extreme weather conditions right now from our people in Greymouth enduring floods, to folk on the east coast of the US going through bitterly cold…
Keytruda, the immunotherapy drug, is expected to be registered in New Zealand this year for head and neck cancer, says a spokesperson from the drug company Merck.
Once it is registered Merck will make a submission to Pharmac for funding.
At the moment, it can be provided in private clinics but like all of these unfunded drugs it is very expensive. Givealittle accounts are often formed so that patients can access a…
Kia ora whanau,
Happy New Year
We wish you the very best for 2018. I hope all is well with you and your loved ones. The holiday break is over and the Network is ready for the challenges of the year ahead. We have committed to working with the…
Readers, Val Ireland made an impassioned plea for help following a series of poor outcomes from head and neck cancer treatment/reconstruction in Auckland.
You can read Val’s story here. http://nzh.tw/11966945
I have decided to openly respond to Val to encourage open discussion about the current service, and the steps we, at the Network are taking now, and in the future to improve the performance of the…
Thank you to Geoffrey Reid for sharing this with us. It's always an interesting read.
Good wishes to all our members and to people affected by head and neck cancer everywhere.
Let's hope the new year ushers in good things for those of us in this corner of the health care universe. Always hopeful. Always ready to support those who need help on their head and neck cancer pathway.
There's nothing magical about a new year in my book. It's what we make it, a time to reflect, to make plans, to throw out the things that didn't work…
May the rain fall on the cracked earth
May the gaps in society be filled
May the earth get back on its axis
May the rivers be cleaned
The kauri saved
And the mountains covered in snow
May there be new treatment for metastatic head and neck cancer
May Pharmac fund…
One more Weds Weekly before the Christmas break from one of our contributors
Learning to speak after losing a voice box is a challenge for a good number of cancer survivors, but it’s a challenge many times worse in a country like India where the cost of prosthetic voice boxes is…
Weds Weekly is in summer hiatus so I will endeavour to post one important health story each week until normal service resumes.
Ever wondered about the discrepancy between disabling illnesses and disabling accidents? Have a listen to this interview with someone who is taking a good look at this issue.
ACC barrister and researcher Warren Forster has been named the NZ Law Foundation International Research fellow for 2017. He will spend…
There's no art to find the mind's construction in the face. - William Shakespeare
These plastic surgery quotes were retrieved from New Zealand clinician sites on 4 December 2017.
“...it’s your face which people notice first. Your face projects an image to people about who you are.”
“Plastic Surgery: Empowering You With The Confidence To Succeed In Both Your Career & Social…
Friendly Friday is about counting our blessings. Christmas , for all its crass commercialism, is called the season of goodwill.
Today we want to thank the health professionals who care for us: nurses, surgeons, speech language therapists, oncologists, all the people who make up a head and neck cancer team.
Olwen has made a virtual card to show our appreciation. …
A recent NZ Herald story about a young woman with recurrent nasopharyngeal cancer aroused our interest in the immunotherapy drugs Keytruda and Opdivo, approved in NZ but not funded for HNC.
Eve McGauley was only 15 when she contracted the disease. She went through the awful…
As various authorities are fond of pointing out – the cost of cancer treatment and medication can be extreme. Generic drugs are common and there are others (not counting dubious…
Kia ora whanau,
Auckland Review see our post here. We are still seeking feedback until the New Year. So have your say.
A huge thank you to…
The Auckland/Northland review of regional head and neck services was completed this year. The Working Group was disestablished and a new Oversight Group established. The first meeting of the Oversight Group was held last week.
If you have not yet read the report you can do so…
We're a national network with members from all over the world as well as NZ. But we started with our little group of Auckland stalwarts and branched out from there. Today, Thursday, the Auckland Support Group had its last meeting of the year, not at Domain Lodge, but under the spreading chestnut (?) tree in…
Another Weekly Wednesday round-up from one of our members. The video below is from a site that explains the near infrared photoimmunotherapy trial mentioned in the first article.
While immunotherapy drugs and robotic surgery advances tend to dominate the new treatment spotlight there is much…
Gypzee Kerry, a kind and wise person, joined our group recently after having treatment for head and neck cancer. Kerry has worked in the field of drug and alcohol rehab and has some advice on how to recover after setbacks in life. I grabbed this from the Facebook page with Kerry's permission.
A programme or guidelines I try to work by for recovering ......
A balanced lifestyle …
A helping hand.. easy to…
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