Our Facebook Group Head & Neck Cancer Support

News

All Posts (433)

Dr Giuseppe ‘Peppe’ Sasso is currently the Clinical Director of the Radiation Oncology Department at the Northern Regional Cancer and Blood Services, Auckland City Hospital and Auckland District Health Board (ADHB), having moved to New Zealand, from Italy with his family in 2010.

Peppe’s Talk

Auckland is very…

Read more…

Monday's Meeting

It went well! We had 19 attendees, two via Zoom. It was our 2018 AGM with a successful outcome. Diana was relected Chair, Cosette is the new Secretary and I am on the committee with the old crew plus Toni Davis (Auckland) and Heather Anderson (Timaru). We established Dr Andrew Miller as a well integrated part of the committee in the role of advisory…

Read more…

New Zealand Herald Article

Tena koutou,

As you know there is an article in the New Zealand Herald investigating the Head and Neck Cancer service in Auckland. The Network has responded to questions from the NZH. I am enclosing our full statement below.

It is important at this time that no one feels alone or distressed. If anyone is distressed by the media attention or feels…

Read more…

Two events in the last 10 days, one huge and global and one small and local, showed the joy the basic connection between human beings can bring.

The picture of Kim Jong Un and Moon Jae-in shaking hands on the border of North and South Korea ... Kim Jong Un is a brutal dictator but after all the decades of hostility, it was a symbolic moment of reunification. A bit like the tearing down of the Berlin Wall. Maybe only a fleeting glimpse of that but still ...…

Read more…

 

The anti-vax movement is generally  (and justifiably) treated with a good dose of scepticism and ridicule and it’s likely any anti-radiation movement will suffer the same fate  But as lead story this week explains not everyone swears by radiation treatment.

The second story looks at treatment delays – a  nightmare when it’s…

Read more…

Tuesday News, 1 May

There is just too much health news going on to NOT restart our Tuesday Health News. This is about health in general. 

Does the Minister of Health, David Clark, have the worst job in New Zealand at the moment?  This story is about the much needed end to the GP fee problem we wrote about last year. Depending on where you live, you might pay $60 to go to the GP or $15.00. It's a funding formula that is built into the system and is going to be a headache to change.…

Read more…

 

It's not done to talk about a public holiday after the event but I'm going to try. Anzac Day (two days ago) is a big cultural event in New Zealand. My view of WWI is just sadness at what I see as the careless waste of young men's lives. But below, if the link works (it takes you to their Facebook page then a video of them singing in Queenstown) is…

Read more…

A while back Keytruda was being hailed as the new wonder drug.  There’ve been a few up and downs since then, but it’s still around and the lead story suggests that early promise can be realised.

Second story suggests it could be joined one day by the new AZD1775.

And we finish with one from the `you are what you eat’…

Read more…

Bob Watt is one year out from this head and neck cancer, so clearly shown in his PET scan. Bob is in Southland and had 30 treatments via radiation and 6 (once a week) of carboplatin to treat both tumours which were diagnosed as Stage IV T1 N2a HPV positive. He is well now and the medical team don't want to give him another scan until the 3 year…

Read more…

New support forum

 

We have updated our forum. Because 99% of our discussion is in our closed Facebook group, the forum has never really taken off apart from with a very small number of people, mainly committee members. Some of us are experienced users of online cancer forums like the Oral Cancer Foundation and Mayo Clinic Connect but we have reluctantly* conceded…

Read more…

 

Along with `quit alcohol and smoking and lose weight’ the line `exercise more’ is pretty much standard medical advice. However, the lead story notes that there may be more to the`exercise more’ than simply to make everyone feel guilty.

Second story re-emphasises the need for good dental hygiene.

Meanwhile
#…

Read more…

Network News 16 April 2018

Kia ora whanau,

 

Our Network - update
In May we are holding our Annual General Meeting to report on the activity of the Network over the last year, and to elect officers for the 2018/9 year. We will send out through our usual channels our Annual Report, and an invitation to attend our AGM. This year we intend to broadcast our meeting using Zoom. You can access our AGM meeting from here.  …

Read more…

After intense treatment for head and neck cancer Sean Woods packed up his old life and went on the road in a gypsy caravan selling his tie dyed products, mostly t-shirts. This means he can meet up with other members in clinics and meetings and gyspy fairs around the country. 

Here he is in Palmerston North with Gypzee Kerry.…

Read more…

Happy with your treatment experience?

Please share your thoughts on your recent treatment experience. This can be at any stage of your cancer journey, pre treatment, treatment, post treatment, and survivorship. 

You can take our survey as many times as you like, and we encourage you to have your family/whanau and carers share their thoughts as well. Click the link to share your thoughts.

https://www.surveymonkey.com/r/PatientNZ

 

 

Donations are always welcome

Donate via Givealittle

Or, you can put a little bit of money in our Kiwibank account!

38-9017-0819902-00

Upcoming Events

Cancer Dictionary