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Post treatment problems? Weds Weekly

Wednesday Weekly is a collection of recent stories about head and neck cancer from Google Alert, compiled and introduced by one of our members. 

Couple of stories this week about life after diagnosis and treatment – even if successful it’s not all roses.

Lead story suggests…

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Network News - Monday 27 November 2017

Ata marie whanau,

Kia ora whanau,

The Auckland Review of Head and Neck Services


None of us are mind readers. And, this I know is true, I cannot see the future. So for the Network to accurately represent your interests in treatment, care and support, we need your help. Please read the report from the Auckland Review…

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I’m in favour of patient attendance at the multidisciplinary meeting. The first time I attended one in October 2009, I felt quite humbled by the experience and got a secret thrill out of being the centre of attention. Wow, so many medical people looking at me and wanting to make me better.

Last time, though, in 2014, it was a more daunting experience. I had a recurrence and the meeting room seemed to have been turned into a theatre with me alone on the stage. I still think it was of…

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Is it nature or nurture that determines our fate? Is it our genes that make us who we are or our environment? According to some of the speakers at this symposium, we are not fully responsible for many of our behaviours. Our bodies and minds are affected by genes, hormones and bugs. Nature is what makes…

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We’re trying to act on the lessons we learnt from the e-Patient Dave workshop and lecture. I'm looking at my last major encounter with the health system through the lens of his philosophy.

Remember the Dave…

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Health News Roundup 14/11/2017

A smart device for the hearing impaired.  An iPhone or iPad can connect directly to a cochlear implant,  Good news for the increased number of people who will be getting cochlear implants after the additional funding announced in the build-up to the election.…

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Network News - Monday 13 November 2017

Kia ora whanau,

EPatient Dave Visit

It was a great honour to meet Dave de Bronkhart. Dave was a guest of the Waitemata DHB. He spoke to WDHB as part of the CEO lecture series. He kindly shared his time with a smaller workshop which some of us from the Network attended.

Dave's story is moving and fascinating, as his cancer treatment was recommended not by his health care professionals, but through a online patient discussion board. Dave's treatment…

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Spring challenge: Friendly Friday

Spring is almost over but it's still here all around us with blossom, buds, new leaves, flowers and tiny fruit. Mild days, longer nights and sometimes, even in Auckland, episodes of sunshine. 

How do you want to share the love of spring with us? Post a photo on our Facebook group: https://www.facebook.com/groups/1116515895074395/ or find a poem ...…

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Patient Story. Skin cancer of head and neck.

John is a member of the Head and Neck Living Well Group run by the Cancer Society's Christchurch Centre. While his cancer is melanoma, the treatments John has experienced are only too familiar to us: radical neck dissection, radiotherapy and skin grafts.

Keytruda is approved for head and neck cancer too but is not yet funded for HNC by the DHBs. 

There is an overlap between skin cancers…

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Cancer Dictionary