From Auckland, New Zealand. The Head and Neck Cancer Survivors' Support Network, at Waitemata District Health Board's North Shore Hospital.
Opening Statement World Head and Neck Cancer Day 2017
Kia ora from Auckland, New Zealand.
We, the Head and Neck Cancer Survivor's Support Network are first to recognise World Head and Neck Cancer Day 2017. We welcome all patient groups around the world to connect, support and advocate for…
We all want to live in hope. Sometimes hopes for survival are dashed if the cancer has spread too far. Can there be any hope then? Not in the narrow sense of the word maybe but there are still many things we can hope for. We might have years; we might be able to live with the cancer.
We can hope for good days, for good care, for a chance to make peace with life, to achieve a goal or fulfil a dream. We can hope for those few more good months or years where we can fulfill what we…
The American enthusiasm for litigation is generally regarded with incredulity by most observers so the lawsuit mentioned below probably shouldn’t come as a surprise, even if the option of cancer with hair - or no cancer, but no hair - seems like a no brainer.
More pertinent is the U.K. statement on HPV…
Fred's partner, Olwen, tells Fred's story.
It was mid 2015. Fred (68) was a bit irked. He had a sore on his tongue at the side near the back. Eating chocolate hurt it and it was getting annoying. He…
Next month’s Auckland Meeting
This will be on 3 August, 9.30 to 11.30 at Domain Lodge.
Our speaker is Dr Neil Croucher who will address us via Skype. One of his Oral Health colleagues who works at Greenlane will attend the meeting. Dr Croucher is the overall manager of Oral Health at Greenlane, Middlemore and in Whangarei. Prepare those questions you have been dying to ask about your entitlement to dental care after head and…
One of our members, Bernard, speaks in the video within this Nelson Mail article. He and his fellow throat cancer survivor speak out about the challenges of finding a new life after cancer and the need for males to be vaccinated against HPV. …
The head and neck cancer patients and carers I met at the Auckland Support Group in 2014 were pretty tough and staunch. I'd attended other support groups where there were tears and tender feelings but the head and neckers were quiet about their feelings and just wanted to learn more about the disease and enjoy the feeling of being silently supported. I don't know why our group is still quite matter of fact in its approach to cancer; maybe it is because we tend to be in an older age group…
This is an extract from a 2015 newsletter of a meeting at Domain Lodge. Swallowing issues do not go out of date.
Speaking today was head and neck surgeon Dr Bren Dorman from the ORL department. His talk was on swallowing issues and consisted of
videos as well as slides. The videos were of scoping procedures within the hospital clinic or the ward, showing swallowing tests and impediments to swallowing as well as some of the treatments offered.
Patients in the…
Given the advances in gene therapy, robotic surgery, proton treatment and more it’s possible to imagine the tide has turned in the cancer battle. And maybe it has, but those advances usually come with a caution mainly added as an…
Here is another WHNCD event in Auckland next week.
Gillies Hospital, a Southern Cross hospital in Epsom, is having two WHNCD events.
On the day itself, 27 July, they are having a staff red shirt fundraising day.
Prior to that, on 24 July from 6 pm til 8 pm, they are holding a Head and Neck Forum for General Practitioners.
The following topics will be covered
- Thyroid Ultrasound by Dr John Chaplin
- Using a Robot for Head and…
Multidisciplinary meetings, those panels we front up to after diagnosis. A room full of doctors and other health professionals who are going to decide our treatment and hence our fate. I've been to two: in the first there was a semi-circle of clinicians standing around the edges of the room and my…
The Auckland campaign for World Head and Neck Cancer Day will include free screening of the head and neck on 26 and 27 July. So far we are not aware of screening in other New Zealand centres.
Auckland Head and Neck Specialists, who operate at Mercy Ascot Hospital, are providing two screening sessions on the day before WHNCD. This will be on 26 July. The free screenings will be at their Takapuna and NorthCare branches on …
The care packs are designed to make new patients aware that they don't have to face head and neck cancer alone.
Shane was diagnosed with Baso-Squamous Cell Carcinoma, a variety of head and neck cancer that started on the skin. His disease has been persistent but he has risen above it each time as a result of complicated surgery (nerve grafts and gold weights) and his own strength and courage. He had a difficult path to diagnosis which goes to show that sometimes the patient is the expert.
An interesting term I have run into during my cancer journey…
Cosette Calder, who lives in Christchurch, had a lot to live for when she was diagnosed with head and neck cancer. Hard as her treatment was, she knew her cancer was curable and she had a five-year-old son to look after. Cosette’s early symptoms are interesting too. They show us how throat cancer can manifest itself.
Here is her story.…
Virtually everyone reading this article, at some time in their lives, will acquire one of the many types of Human Papilloma Virus (HPV). Four out of five (80%) of us will acquire one of the 40 subtypes associated with genital infection. These genital HPV subtypes cause visible genital warts and genital cancers. Fortunately, for most of us, our immune systems clear the genital HPV subtypes, without any obvious signs of infection. Some people need treatment for visible…
Claims for `natural’ treatments are usually best taken with a healthy dose of scepticism – though some, like the aloe vera mentioned below, are almost self evident. Suggesting education reduces tobacco use and thus cancer levels seems more like a variation on a regular theme, while possible advances in…
Who said this about the New Zealand health system? "We have a world-class health system but third class treatment, and we have the capacity to make a big difference. Not enough people with the greatest need are getting access to our services because we're stuck in a 19th-century view, but it's the 21st century."
Not me, and I do agree.…
This is the second part of the stories of late diagnosis collected and collated by Olwen Williams. These two illustrate how pretty obvious signs of cancer can be missed until it is too late for an easy solution.
As we build up to WHNCD, we will publish more stories about aspects of the cancer to raise awareness.
Note: this page contains paid content.
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Auckland46 Auckland Support Group Members
Health Professionals19 Members
Waikato - Bay of Plenty15 Members
Other Interest Folk13 Members
Central Districts9 Members
Canterbury - West Coast8 Members
Adenoid Cystic Carcinoma (ACC)7 Members
Speech Language Therapists7 Members
Otago - Southland5 Members
Lary Group2 Members
Caregivers, Family and Friends2 Members
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