Kia ora tatou,
This month we launch our fundraising campaign for the year. Although we run a lean and mean operation, we need your donations to ensure we can continue our work of connecting, supporting and advocating for people affected by head and neck cancer.
This year we are joining with Beyond Five in Australia to raise funds through Soup for the Soul. Simply, you make up a soothing, comforting bowl of soup, share it with your friends, family and colleagues. Ask your diners to make a donation to Head and Neck Cancer Support Network. You can forward the funds through Give a Little or alternatively direct to our bank account.
||HEAD AND NECK CANCER SUPP…
It's a friendly, and restoring way to share with the others the support and kindness of the head and neck cancer community. You can see our progress on our website. We have a lovely new widget reading $0 funds as I write. We need approx $3,000 a year to run our Network, so your help is greatly appreciated.
You can find our Soup for the Soul Brochure here. SoupfortheSoul2019.pdf
World Head and Neck Cancer Day 2019
The day is held on 27 July each year. There are a number of events taking place around the world. If you are involved in an event, and would like to share please let us know. We are happy to publicise your event. If you want to follow the day on Twitter the hashtag is #WHNCD2019 or you can join the Facebook Group https://www.facebook.com/WHNCDAY2019/
Annual Members Survey Results
Every year at this time, we take the temperature of the head and neck cancer community to find out the needs of patients and their families/whanau. This year's survey is open for the month of July. There are less questions that last year, so it's even easier to participate. If you have any specific issues you wish to raise, we have an open ended question for you. https://www.surveymonkey.com/r/hncnz2019
We welcome new members Liza Gyde and Lynette Cornes.
We have redeveloped our website. We hope you like to new logos and new look. This is a new beginning for the Network. We will be further developing our website to provide support for members before, during and after treatment. More to come in this space.
Patient Voice Aotearoa is continuing to work hard for better access to medicines, a central cancer agency, and better outcomes for people affected by cancer. You can get involved by joining Facebook groups in your region and by becoming part of the Nationwide Network. https://www.facebook.com/groups/438364430053731
Bay of Plenty: https://www.facebook.com/groups/298886947658801/
East Coast: https://www.facebook.com/groups/299994910889938/
Hawke’s Bay: https://www.facebook.com/groups/609185609567883/
Palmerston North: https://www.facebook.com/groups/2336987913250472/
West Coast: https://www.facebook.com/groups/918405465218335/
The Auckland/Northland Regional Service
The service is introducing private scoping of patients at the Multi Disciplinary Clinic held each Friday. Patients will be examined in a private room, adjacent to the Multi Disciplinary Meeting. The patient examination will be available to the clinicians in the meeting through a video link. This will ensure the dignity, privacy and respect for the patient, their family/whanau and carers. This development has been a year in the making. We are very proud to have supported this improvement for patients. We hope to see it replicated in other treatment centres.
We are pleased to be working with the Auckland Health Foundation to refurbish the whanau room in Ward 74 of Auckland City Hospital. The hospital is a hub for patients from the greater Auckland and Northland area. We want carers, family/whanau and friends to feel comfortable while supporting those affected by head and neck cancer. If you can donate please do...make sure you follow the link to Ward 74. https://aucklandhealthfoundation.org.nz/get-involved/help-us-refurbish-ward-74s-whanau-room/?fbclid=IwAR1sgWzra9JH6zQMcEInktOecT8xp3K3Q2y7GN-RYtlcltlOnQbu746Wq44
Beyond Five are the Australian charity with the specific aim of supporting people with head and neck cancer. See here for the latest newsletter. As usual it is packed with valuable information. B5_Supporter_Newsletter_Issue_7_July_2019.pdf
Online Support (Apps, websites, resources)
Live Better With
Live Better With Cancer is here to make everyday living a little bit better for the millions of people living with cancer all over the world. You will find a treasure trove of resources and support. Highly recommended. https://cancer.livebetterwith.com
Looking for answers or support?
The Cancer Society knows that going through cancer is tough and can raise many questions. They want you to know that they are here for you. From help with getting to your medical appointments or understanding your treatment options, to offering practical support, they can help.
The Cancer Society can help you find answers to questions about your treatment and its effects. There are pages of cancer information online and in booklets, and they are always available for emotional support when things get tough.
For answers, support or just a chat, call us free on 0800 CANCER (226 237) Monday to Friday, 8.30am–5pm.
Thank You to our Corporate and Community Partners
Online Support Community - Head and Neck Cancer Alliance
SPOHNC | Support For People with Oral, Head and Neck Cancer
HNC Support International: Head and Neck Cancer Support
Head and Neck Cancer | Cancer Support Community
Throat Cancer Support and Resources - Throat Cancer Foundation
Head and Neck Cancer Alliance Support Group & Community - Inspire
The Oral Cancer Support Forum
Head and Neck Cancer Survivors
Be sure to add our email address to your address book or safe senders list so our emails get to your inbox.