Meetings (8)

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We were privileged to hear a talk about the Health and Disability Advocacy Service by advocat

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Auckland is not the only centre holding head and neck cancer support meetings. As far as we know there are regular meetings in Nelson and Christchurch. We are not sure about Wellington. Does anyone know?

Here, committee member Cosette Calder reports on the most recent Christchurch meeting. 

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On Thursday 19th of October Christchurch held its 6 weekly meeting. This meeting was about  “patient stories” where patients tell their story to the group.

Our first speaker was diagnosed with base of to

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September Meeting Report

It was good to see two new members at our meeting this morning: Susan and Kevin, both from Northland and both receiving radiotherapy here in Auckland. 

Dr Kim Gear was unable to attend but we discussed the dental situation at some length. This is an ongoing project of ours with the next step to hear from Kim about her "survivorship" hospital and my intention to follow up a suggestion that I contact the Dental Association. 

We talked about the election year promises and what we would like to se

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Next Auckland Meeting

Thursday, 7 September, 9.30 - 11.30 at Domain Lodge

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On the agenda

  • Update on dental issues and recommended dentists
  • The Swallows book full of patient stories including three of ours
  • Our speaker of the day is Mary Panko of Unitec and the End of Life organisation. Mary will speak about advanced care directives, living wills, and how much legal control we can have in terms of achieving a dignified end of life. She will probably speak first. 

I hope this is not a depressing topic for ou

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How do you transition patients from curative but damaging treatment to survivorship? Dr Kim Gear, oral medicine specialist, wants to be the ambulance at the top of the cliff while Dr Neil Croucher, Clinical Director of Oral Health admits that funding and staffing for follow up dental care is limited and patients should go back to private dental care as soon as they are returned to function after treatment. 

Dr Kim Gear

Today's meeting was about teeth, about the mouth, but also about surviv

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A small turnout on Thursday 6 July. The America's Cup parade was on and the weather was atrocious. Nevertheless we had a fruitful meeting, getting to know a new member of our network, Sharmayne and welcoming Marlene Evans back into our midst. 

We started with a video about WHNCD, a day of observance that started in 2014. It featured Jatin P. Shah who is the head of the International Federation of Head and Neck Oncological Societies as well as Michael Douglas and Catherine Zeta-Jones. Well worth

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