Kia ora whanau,
The Auckland Review of Head and Neck Services
As you may know, we are part of a Working Group reviewing the Head and Neck Service for Auckland, Counties-Manukau, Northland and Waitemata District Health Boards. As a Network, we value the opportunity…
Advocacy for people affected by head and neck cancer - "Nothing About Us Without Us!"
The Latin phrase is, Nihil de nobis, sine nobis. The idea; that no policy should be decided by any representative, without the full and direct participation of those affected by that policy. This principle extends to national, local and sector policy making. It gives the opportunity for full participation from service users, consumers, and…
Responding to patients' post treatment concerns
Congratulations to our 100th website member, Emma Wilkins of Staffordshire. We are very pleased that our site has gained so much traction after only 10-11 months. Most of our discussion is over on our closed Facebook group, but the website is doing well too, in terms of viewer-and membership.
Welcome also to our 101st member, Mere Manning of Napier. Remember that you are all more than welcome to comment under our blog posts or join our forum.
To Auckland…
Patient Communciation with Clinical Services
If you are a person affected by head and neck cancer, or you take care of someone affected, or you have a friend or a family member, you may have had some dissatisfaction with communication with health…
New Zealand effort outstanding for World Head and Neck Cancer Day
Our WHNC day was a huge success. I am delighted to continue hearing about events, connections, donations, and general fun and camaraderie well after the day. Thank you to all those members, and our community, who gave up their time to raise awareness, education about Head and Neck Cancer. If you missed some of the action you can catch up here.…
Next month’s Auckland Meeting
This will be on 3 August, 9.30 to 11.30 at Domain Lodge.
Our speaker is Dr Neil Croucher who will address us via Skype. One of his Oral Health colleagues who works at Greenlane will attend the meeting. Dr Croucher is the overall manager of Oral Health at Greenlane, Middlemore and in Whangarei. Prepare those questions you have been dying to ask about your entitlement to dental care after head and…
The Auckland campaign for World Head and Neck Cancer Day will include free screening of the head and neck on 26 and 27 July. So far we are not aware of screening in other New Zealand centres.
Auckland Head and Neck Specialists, who operate at Mercy Ascot Hospital, are providing two screening sessions on the day before WHNCD. This will be on 26 July. The free screenings will be at their Takapuna and NorthCare branches on …
Who said this about the New Zealand health system? "We have a world-class health system but third class treatment, and we have the capacity to make a big difference. Not enough people with the greatest need are getting access to our services because we're stuck in a 19th-century view, but it's the 21st century."
Not me, and I do agree.…
Since our last Network News one of our members, Udaya Kovvuru, passed away on 21st June 2017. We met Udaya, and his wife Shoba last year after his surgery. We have followed his journey through our Facebook group. Udaya, was fortunate to have wonderful support from Shoba. She is a wonderfully generous and wise person, sharing their story, and…
This week one of our members Alan Evans (82) passed away 8 June 2017. Alan and his wife, Marlene, were two of the first people I met at the Auckland Support Group. They were regular attenders prior to Alan's advancing illness. Alan was unable to speak. Despite that he enjoyed the group. Marlene was his voice, and their close and warm relationship was…
Happy Queen's Birthday from all of us. Welcome to new members.
We received the sad news last month that Laura Taylor Lopes passed away on 26 May. Laura lived in Whangarei but received her treatment in Auckland and attended our meetings. She called in recently on her way to Mercy Hospital to see about the Keytruda treatment.
At 39 and pregnant with baby Theo, Laura was in a different demographic to most of us. She endured the surgery and radiation bravely, visiting us on…
Donate via Givealittle
Or, you can put a little bit of money in our Kiwibank account!
38-9017-0819902-00
