Kia ora tatou,
This week our Network News is chocker full. We have a new activity where we asked you to connect with five new people on the website. We have some new support resources, the opportunity for you to take part in an international survivorship survey, and some information on the vexed problem of "informed consent". Finally, you get to know our Chair, Diana Ayling as she takes on the 31 question Challenge! Happy reading...…
Kia ora,
A Sensitive and Real Issue Resolved!
Thank you to those who provided comments on our sensitive issue. We have changed our joining process to include a question regarding your wishes. This will be available to all who join the Network. If you wish to update your profile and express your wishes, go to MY PAGE and OPTIONS (right side of the page) EDIT PROFILE.
Support - what does it mean to…
Kia ora,
this week we ask you to respond to our email to you. Your committee are focused on meeting your needs. We need to know from you what are your important, and urgent needs. Over the next week we will email each of you to find out how you are doing, and how we can help you or your family/whanau and friends. Please respond to the email so we can take action on your behalf.
A Sensitive and Real Issue
We have a…
Kia ora,
this week we summarise the most recent Auckland Service Improvement developments..
Auckland Head and Neck Service Improvement Project
Key Messages from HNC Implementation Oversight Group (IOG) Meeting – 19 September…
Your Head and Neck Cancer Support Network is working hard for you…
Kia ora whanau,
Auckland/Northland Service Improvement
The Network volunteers continue to work with the Auckland/Northland Service to implement the recommendations of last year's review. We are seeking ideas for how to improve the Multidisciplinary Team meeting. Many HNC patients, their care givers and family/whanau will…
Greetings to everyone
Diana is still in Europe so today's news will be brief.
We welcome Tamara, Nick, Marlene and Mary to our network. These are our new June members so far.
Most of our discussion is on our closed Facebook group,
https://www.facebook.com/groups/HNCSupport.Aotearoa/?ref=bookmarks but you can contact us via the…
Kia ora whanau,
Auckland/Northland Service Improvement
Five members of our Auckland/Northland group are taking part in workshops looking at aspects of head and neck cancer care like pathway co-design, models of care, the role of dietitians, psychologists and speech langauge therapists. There have been some lively discussions and a sense that the patient's voice is being heard.
Auckland June…
Kia ora whanau,
We win!
I am delighted to share with you that the Head and Neck Cancer Support Network won the 2018 Excellence in Health Literacy Award from the Waitemata Health Excellence Awards. Thank you to Maureen Jansen, Jarrod O'Brien and David…
Kia ora whanau,
Vote for Us!
We have entered the annual health awards competition at the Waitemata DHB. We need lots and lots of people to vote for our poster.
Here's what you need to do. VOTE FOR 117 - for our entry.
The…
Kia ora whanau,
Our Network - update
In May we are holding our Annual General Meeting to report on the activity of the Network over the last year, and to elect officers for the 2018/9 year. We will send out through our usual channels our Annual Report, and an invitation to attend our AGM. This year we intend to broadcast our meeting using Zoom. You can access our AGM meeting from here. …
Kia ora whanau,
We are one quarter of the way through the year. We hope you have had an enjoyable break over the holiday period. The summer seems to be never ending, and we hope you are enjoying the good weather.
Recently, a number of our members have shared their stories of head and neck cancer. Three of those stories are highlighted in our most populare posts. Links are below. I highly recommend each of the stories for their unique perspectives of head and neck cancer…
Kia ora whanau,
We know that some people do not "do" Facebook, and are unlikely to sign up to our website. These folk need to connect and receive support, so we are taking a new approach. We are introducing What's App, the Smartphone app, that connects people without the need for the Internet. We think this might suit some of our men. It's a simple way of knowing what's…
Kia ora whanau,
Global Cancer Report
The Cancer Societh has responded to the publication of Global Cancer Statistics in the January 2018 Lancet medical journal. The Society is…
Kia ora whanau,
6 February is a very special day for New Zealanders. All over the world we are celebrating the signing of the Treaty of Waitangi (te tiriti O Waitangi) in the Bay of Islands on 6 February 1840. It is from across the bay, from the treaty grounds I write this Network News. There is much excitment in the air as we…
Kia ora whanau,
Our Network - update
…
Please share your thoughts on your recent treatment experience. This can be at any stage of your cancer journey, pre treatment, treatment, post treatment, and survivorship.
You can take our survey as many times as you like, and we encourage you to have your family/whanau and carers share their thoughts as well. Click the link to share your thoughts.
https://www.surveymonkey.com/r/PatientNZ
Donate via Givealittle
Or, you can put a little bit of money in our Kiwibank account!
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