Monday News (50)

Network News 5 August 2019

Kia ora tatou,

Network News

World Head and Neck Cancer Day 2019

We had good media coverage for the day. I would like to thank the Australia New Zealand Head and Neck Cancer Society, the New Zealand Dental Association, the Gillies MacIndoe Research Institute, the Sexually Transmitted Diseases Education Foundation, the Cancer Society, www.hpv.org.nz and the wonderful team at Wellington Zoo. A great effort. You can read all the information shared here. http://headandneck.org.nz/news/weekly-wednesd

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Kia ora tatou,

Network News

3268268799?profile=RESIZE_180x180This month we launch our fundraising campaign for the year. Although we run a lean and mean operation, we need your donations to ensure we can continue our work of connecting, supporting and advocating for people affected by head and neck cancer. 

This year we are joining with Beyond Five in Australia to raise funds through Soup for the Soul. Simply, you make up a soothing, comforting bowl of soup, share it with your friends, family and colleagues. Ask your diners to

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Kia ora tatou,

Network News

Head and Neck Cancer Community Concerns

In an Open Letter our Chair, Diana Ayling, addresses community concerns that have arisen over the last year. As the New Zealand health system faces significant pressures, it is important we as a community work collaboratively together, with one voice. Putting the past behind us is part of that process. Click here to read more....

Annual Members Survey Results

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The Network carries out a Members Survey each year. We recently compl

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Kia ora tatou,

Network News

The Network has a new Board for the 2019/20 year. Diana Ayling (Chair), Heather Anderson (Secretary), and Board Members, Monica Koia, Brian Sheppard, and Gaynor Anderson. We elected to change the name of the “Committee” to “Board” and to allow online voting for any meeting of members. You can access the Minutes of the AGM here.

The Board is committed to two projects in the year ahead. We will be focusing on bringing the head and neck cancer community in New Zealand to

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This week our Network News is all about our Network. The AGM is to be held Monday 6 May at 6pm at Domain Lodge, Grafton, Auckland. Please check the details on our website. Patients, friends and family are most welcome to attend. It is an opportunity for members and prospective members to get together to discuss the performance of the Network over the year, and to plan for the year ahead. 

What is you cannot attend in person?

You can attend our meeting by accessing it through Zoom technology onl

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Kia ora tatou,

Stand with our brothers and sisters affected by lung cancer. More New Zealand die of lung cancer than any other cancer. Sufferers are often stigmatised by smoking, when most have never smoked. The Lung Cancer Foundation are looking for support for their petition to have lung cancer declared a health priorty and to approve additional budget for Pharmac to fund lung cancer medications, including Keytruda, Alectinib, Osimertinib and Crizotinib, for all Kiwis with advanced lung cancer

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Network News - 18 March 2019

 

Kia ora tatou,

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Our deepest, heartfelt, condolences to the family and friends of the victims in the Christchurch Mosque shootings. Arohanui.

It's hard to find the words that will acknowledge what happened and how it has made many of us feel. I strongly suggest that if the recent events have left you feeling overwhelmed you seek support from the Cancer Society,  or your General Practitioner.

This week our Network News include a summary of the Palmerston North Support Group meeting held in Janua

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Kia ora tatou,

this week our Network News includes an opportunity for you to share your views for the government's Health and Disability Sector Review. Click here to give your thoughts. We give you the details of the approved plan for the development of the Auckland/Northland Head and Neck Service. We share news from the Auckland Support Group, and introduce our new developments to support Patients. We are giving you the opportunity to ask questions about the Network or anything else that is on

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Network News - 28 January 2019

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this week our Network News celebrates a new year.  As always, our website is the place to go for all your news, resources, and support information. Be sure to check it out, and if you not yet a member, now is a good time! http://headandneck.org.nz/

Network News

Auckland Support Group Meetings 2019

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Here at the Network we seek to respond to head and neckers needs. One thing that has become apparent in Auckland is the need for a support group to meet outside work hours. This year w

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Network News - 10 December 2018

Kia ora tatou, 

this week our Network News .....celebrates a year of connecting, with a great new tool on our website to Chat with others. We update you on our Auckland Support Group December meeting, and invite everyone to join our Auckland evening meetings in 2019. We have an invitation for all head and neckers to participate in Awakening the Giants, Auckland, 2019. We share some new resources on adverse events, lung nodules, some ideas on changing ACC to cover head and neck cancer, and 6 wond

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Network News - 26 November 2018

Kia ora tatou, 

this week our Network News shares changes to meetings of the Auckland Support Group, our Connect 500 project continues, we profile Eva McGauley, an inspirational head and necker who sadly passed away last week. There are lots of new support resources, and news. Read on...

Network News

Auckland Support Group Meetings 2019

Here at the Network we seek to respond to head and neckers needs. One thing that has become apparent in Auckland is the need for a support group to meet outside

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Network News 12 November 2018

Kia ora tatou, 

This week our Network News is chocker full. We have a new activity where we asked you to connect with five new people on the website. We have some new support resources, the opportunity for you to take part in an international survivorship survey, and some information on the vexed problem of "informed consent". Finally, you get to know our Chair, Diana Ayling as she takes on the 31 question Challenge! Happy reading...

Network News

Be Part of the Network 500

134022637?profile=RESIZE_710xWe have 186 members, a

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Network News 29 October 2018

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A Sensitive and Real Issue Resolved!
Thank you to those who provided comments on our sensitive issue. We have changed our joining process to include a question regarding your wishes. This will be available to all who join the Network. If you wish to update your profile and express your wishes, go to MY PAGE and OPTIONS (right side of the page) EDIT PROFILE. 

Support - what does it mean to you? 

131059938?profile=RESIZE_710xIn this post by one of our members "support" the value and nature of support is considered.

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Network News 15 October 2018

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this week we ask you to respond to our email to you. Your committee are focused on meeting your needs. We need to know from you what are your important, and urgent needs. Over the next week we will email each of you to find out how you are doing, and how we can help you or your family/whanau and friends. Please respond to the email so we can take action on your behalf.

A Sensitive and Real Issue
We have a very strong community of people affected by head and neck cancer. We are seeking

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Kia ora,

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this week we summarise the most recent Auckland Service Improvement developments..

Auckland Head and Neck Service Improvement Project

Key Messages from HNC Implementation Oversight Group (IOG) Meeting – 19 September 2018

  1. Louise Elia, kamatua from WDHB has joined the IOG to ensure a Maori perspective is factored is part of the planning and development of the Head and Neck Service. You can find our more about Louise here.

  2. Joy Farley, an experience health manager, has been engaged to as
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Your Head and Neck Cancer Support Network is working hard for you

99918716?profile=originalHNCSN recently completed a governance transition. We would like to once again thank those who made the effort to get the Network off the ground. Now it is time to move into a new phase and to future proof the Network, to have the Network as the driving force for all those who are affected by HNC, cancer patients, whanau, friends, and caregivers.
 
We remain committed to fulfilling our mission of connecting, supporting
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Network News
 
We care about your feedback
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We continue to have our Open Survey available to collect your thoughts, and experiences about your HNC treatment. If you feel you need to get something of your chest you can do so here. https://www.surveymonkey.com/r/PatientNZ
 
We have the preliminary results of our Annual Survey. You can find out more here. http://headandneck.org.nz/annual-patient-survey
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Network News
 
70762271?profile=originalThe Network is in a process of renewal. We have joined with Volunteering Auckland to help strengthen our work with volunteers. We have many supporters throughout New Zealand. Everyone is making a valuable contribution towards our aims. With the help of volunteers we connect, support and advocate for New Zealanders affected by head and neck cancer.
 
Working with Volunteering Auckland we are ensuring all our volunteers are well supported. We are mindful to create safe en
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Network News
 
70762271?profile=originalThe Network is in a process of renewal. We have joined with Volunteering Auckland to help strengthen our work with volunteers. We have many supporters throughout New Zealand. Everyone is making a valuable contribution towards our aims. With the help of volunteers we connect, support and advocate for New Zealanders affected by head and neck cancer .
 
Working with Volunte
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Please share your thoughts on your recent treatment experience. This can be at any stage of your cancer journey, pre treatment, treatment, post treatment, and survivorship. 

You can take our survey as many times as you like, and we encourage you to have your family/whanau and carers share their thoughts as well. Click the link to share your thoughts.

https://www.surveymonkey.com/r/PatientNZ

 

 

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