NEWS

Monday News (50)

Network News Monday 9 July 2018

Kia ora whanau,

Auckland/Northland Service Improvement

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The Network volunteers continue to work with the Auckland/Northland Service to implement the recommendations of last year's review. We are seeking ideas for how to improve the Multidisciplinary Team meeting. Many HNC patients, their care givers and family/whanau will…

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Monday News, 18 June

Greetings to everyone

Diana is still in Europe so today's news will be brief.

We welcome Tamara, Nick, Marlene and Mary to our network. These are our new June members so far. 

Most of our discussion is on our closed Facebook group,

https://www.facebook.com/groups/HNCSupport.Aotearoa/?ref=bookmarks but you can contact us via the…

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Kia ora whanau,

Auckland/Northland Service Improvement

Five members of our Auckland/Northland group are taking part in workshops looking at aspects of head and neck cancer care like pathway co-design, models of care, the role of dietitians, psychologists and speech langauge therapists. There have been some lively discussions and a sense that the patient's voice is being heard. 

Auckland June…

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Network News 16 April 2018

Kia ora whanau,

 

Our Network - update
In May we are holding our Annual General Meeting to report on the activity of the Network over the last year, and to elect officers for the 2018/9 year. We will send out through our usual channels our Annual Report, and an invitation to attend our AGM. This year we intend to broadcast our meeting using Zoom. You can access our AGM meeting from here. Join URL: …

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Network News - 2 April 2018

Kia ora whanau,

We are one quarter of the way through the year. We hope you have had an enjoyable break over the holiday period. The summer seems to be never ending, and we hope you are enjoying the good weather. 

Recently, a number of our members have shared their stories of head and neck cancer. Three of those stories are highlighted in our most populare posts. Links are below. I highly recommend each of the stories for their unique perspectives of head and neck cancer…

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Network News - 5 March 2018

Kia ora whanau,

2147909?profile=originalWe know that some people do not "do" Facebook, and are unlikely to sign up to our website. These folk need to connect and receive support, so we are taking a new approach. We are introducing What's App, the Smartphone app, that connects people without the need for the Internet. We think this might suit some of our men. It's a simple way of knowing what's…

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Network News - Monday 5 February 2018

Kia ora whanau,

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6 February is a very special day for New Zealanders. All over the world we are celebrating the signing of the Treaty of Waitangi (te tiriti O Waitangi) in the Bay of Islands on 6 February 1840. It is from across the bay, from the treaty grounds I write this Network News. There is much excitment in the air as we…

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Network News 8 January 2018

Kia ora whanau,

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Happy New Year

We wish you the very best for 2018. I hope all is well with you and your loved ones. The holiday break is over and the Network is ready for the challenges of the year ahead. We have committed to working with the Auckland/Northland District Health Board to implement the recommendations of the 2017…

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Network News - Monday 27 November 2017

Ata marie whanau,

Kia ora whanau,

The Auckland Review of Head and Neck Services


mindreaderedited.jpg?width=250None of us are mind readers. And, this I know is true, I cannot see the future. So for the Network to accurately represent your interests in treatment, care and support, we need your help. Please read the report from the Auckland Review of…

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Network News - Monday 13 November 2017

Kia ora whanau,

EPatient Dave Visit

It was a great honour to meet Dave de Bronkhart. Dave was a guest of the Waitemata DHB. He spoke to WDHB as part of the CEO lecture series. He kindly shared his time with a smaller workshop which some of us from the Network attended.

Dave's story is moving and fascinating, as his cancer treatment was recommended not by his health care professionals, but through a online patient discussion board. Dave's treatment…

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Network News - 15 October 2017

Kia ora whanau,

The Auckland Review of Head and Neck Services

2147570?profile=RESIZE_480x480As you may know, we are part of a Working Group reviewing the Head and Neck Service for Auckland, Counties-Manukau, Northland and Waitemata District Health Boards. As a Network, we value the opportunity to be part of the Working Group. It is an opportunity to deeply engaged with the…

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Network News 2 October 2017

Advocacy for people affected by head and neck cancer - "Nothing About Us Without Us!

The Latin phrase is,  Nihil de nobis, sine nobis. The idea; that no policy should be decided by any representative, without the full and direct participation of those affected by that policy. This principle extends to national, local and sector policy making. It gives the opportunity for full participation from service users, consumers, and…

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Network News, Monday 4 September

Congratulations to our 100th website member, Emma Wilkins of Staffordshire.  We are very pleased that our site has gained so much traction after only 10-11 months. Most of our discussion is over on our closed Facebook group, but the website is doing well too, in terms of viewer-and membership. 

Welcome also to our 101st member, Mere Manning of Napier. Remember that you are all more than welcome to comment under our blog posts or join our forum. 

To Auckland…

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Happy with your treatment experience?

Please share your thoughts on your recent treatment experience. This can be at any stage of your cancer journey, pre treatment, treatment, post treatment, and survivorship. 

You can take our survey as many times as you like, and we encourage you to have your family/whanau and carers share their thoughts as well. Click the link to share your thoughts.

https://www.surveymonkey.com/r/PatientNZ

 

 

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