Monday News (50)

Annual Appeal to our Supporters
 
 
55564823?profile=originalThis is also the time of year we reach out to our community for support for the year ahead.
 
The Network mission is to ensure no one should face head and neck cancer alone. The Network connects many people around New Zealand affected by head and neck cancer. We provide patients, caregivers, and family/whanau with support resources. We encourage patients to support each other and share experiences. We provi
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Network News Monday 9 July 2018

Kia ora whanau,

Auckland/Northland Service Improvement

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The Network volunteers continue to work with the Auckland/Northland Service to implement the recommendations of last year's review. We are seeking ideas for how to improve the Multidisciplinary Team meeting. Many HNC patients, their care givers and family/whanau will have attended. In our surveys we find there is some dissatisfaction with this meeting. Now is your chance to make suggestions for change. You can click the link to have your sa

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Monday News, 18 June

Greetings to everyone

Diana is still in Europe so today's news will be brief.

We welcome Tamara, Nick, Marlene and Mary to our network. These are our new June members so far. 

Most of our discussion is on our closed Facebook group,

https://www.facebook.com/groups/HNCSupport.Aotearoa/?ref=bookmarks but you can contact us via the page or by email headandnecknetwork@gmail.com.

To all those having treatment this fortnight, we wish you well. 

Reminder: Auckland's next meeting is on 2 July at 11.30, D

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Kia ora whanau,

Auckland/Northland Service Improvement

Five members of our Auckland/Northland group are taking part in workshops looking at aspects of head and neck cancer care like pathway co-design, models of care, the role of dietitians, psychologists and speech langauge therapists. There have been some lively discussions and a sense that the patient's voice is being heard. 

Auckland June meeting 

NO meeting in June as the Monday is Queen's Birthday and the planned meeting the following Tues

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Network News - Monday 14 May 2018

Kia ora whanau,

We win!

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I am delighted to share with you that the Head and Neck Cancer Support Network won the 2018 Excellence in Health Literacy Award from the Waitemata Health Excellence Awards. Thank you to Maureen Jansen, Jarrod O'Brien and David Grayson for all your assistance. It is warming to have our work in connecting, and supporting people affected with head and neck cancer recognised by the health community.

 http://www.waitematadhb.govt.nz/about-us/research-learning/health-excelle

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Network News - Monday 30 April 2018

Kia ora whanau,

 

Vote for Us!

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We have entered the annual health awards competition at the Waitemata DHB. We need lots and lots of people to vote for our poster.

Here's what you need to do. VOTE FOR 117 - for our entry.

The People’s Choice voting will be open for another 10 days. Your colleagues, friends, whānau & networks can continue to vote until 1st May.

VOTE FOR 117 - for our entry.

The poster prize winners will be announced at the Oral Presentation Finals & Prize Giving event on Thursday

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Network News 16 April 2018

Kia ora whanau,

 

Our Network - update
In May we are holding our Annual General Meeting to report on the activity of the Network over the last year, and to elect officers for the 2018/9 year. We will send out through our usual channels our Annual Report, and an invitation to attend our AGM. This year we intend to broadcast our meeting using Zoom. You can access our AGM meeting from here. Join URL: https://zoom.us/j/428290642. We will also have a practice run a week before so you can get used to

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Network News - 2 April 2018

Kia ora whanau,

We are one quarter of the way through the year. We hope you have had an enjoyable break over the holiday period. The summer seems to be never ending, and we hope you are enjoying the good weather. 

Recently, a number of our members have shared their stories of head and neck cancer. Three of those stories are highlighted in our most populare posts. Links are below. I highly recommend each of the stories for their unique perspectives of head and neck cancer experiences. 

This mo

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Network News - 5 March 2018

Kia ora whanau,

2147909?profile=originalWe know that some people do not "do" Facebook, and are unlikely to sign up to our website. These folk need to connect and receive support, so we are taking a new approach. We are introducing What's App, the Smartphone app, that connects people without the need for the Internet. We think this might suit some of our men. It's a simple way of knowing what's going on that doesn't require constant communication and attention. To get started just text me +64 0212130178 and we will con

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Network News - 19 February 2018

Kia ora whanau,

 

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Global Cancer Report 

The Cancer Societh has responded to the publication of Global Cancer Statistics in the January 2018 Lancet medical journal. The Society is calling for major changes to cancer planning and coordination in New Zealand.

The global study analysed the records of 37.5 million patients diagnosed with 18 cancers from 2000 to 2014. Head and Neck cancers were not included in the study.  Cancers covered were oesophagus, stomach, colon, rectum, liver,

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Network News - Monday 5 February 2018

Kia ora whanau,

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6 February is a very special day for New Zealanders. All over the world we are celebrating the signing of the Treaty of Waitangi (te tiriti O Waitangi) in the Bay of Islands on 6 February 1840. It is from across the bay, from the treaty grounds I write this Network News. There is much excitment in the air as we prepare for a day of celebrations, song, dance, and plenty of food! So Kiwis, get out there, and enjoy the day.

 

 

 

Our Network - update

2147783?profile=RESIZE_320x320Over the last few

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Network News - 22 January 2018

Kia ora whanau,

 

Our Network - update


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Jack Ellison, a Canadian poet, writes about our times. As you can see in this excerpt from A Patchwork Quilt, he has a way of explaining the twists and turns of life in a way we can all relate. 

Everyone's life is a patchwork quilt

Made of good times and times of strife

What makes it such a colourful quilt

Are those special moments in life

Moments that change the mosaic forever

When forc

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Network News 8 January 2018

Kia ora whanau,

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Happy New Year

We wish you the very best for 2018. I hope all is well with you and your loved ones. The holiday break is over and the Network is ready for the challenges of the year ahead. We have committed to working with the Auckland/Northland District Health Board to implement the recommendations of the 2017 review. We will continue our work with our Facebook group providing online support for those affected by head and neck cancer. We are planning an even better World H

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Network News - 11 December 2017

Kia ora whanau,

Auckland Review see our post here. We are still seeking feedback until the New Year. So have your say. 

2147753?profile=originalA huge thank you to Ailsa Claire, Chief Executive of Auckland District Health Board, for launching the next phase of the review, and the new Oversight Group. Ailsa made it clear that patients are the first priority of the Head and Neck Service. 

Network News

Our Network continues to grow. We are New Zealand focused, and welcome new folk from around the world. We are a

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Network News - Monday 27 November 2017

Ata marie whanau,

Kia ora whanau,

The Auckland Review of Head and Neck Services


mindreaderedited.jpg?width=250None of us are mind readers. And, this I know is true, I cannot see the future. So for the Network to accurately represent your interests in treatment, care and support, we need your help. Please read the report from the Auckland Review of Head and Neck Service and take our survey. You are welcome to make any comments under each heading. Your feedback is anonymous, and we will use it to continue to advocate for

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Network News - Monday 13 November 2017

Kia ora whanau,

EPatient Dave Visit

It was a great honour to meet Dave de Bronkhart. Dave was a guest of the Waitemata DHB. He spoke to WDHB as part of the CEO lecture series. He kindly shared his time with a smaller workshop which some of us from the Network attended.

Dave's story is moving and fascinating, as his cancer treatment was recommended not by his health care professionals, but through a online patient discussion board. Dave's treatment worked. He has a wonderful life traveling and

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Network News - 15 October 2017

Kia ora whanau,

The Auckland Review of Head and Neck Services

2147570?profile=RESIZE_480x480As you may know, we are part of a Working Group reviewing the Head and Neck Service for Auckland, Counties-Manukau, Northland and Waitemata District Health Boards. As a Network, we value the opportunity to be part of the Working Group. It is an opportunity to deeply engaged with the issues faced by head and neck cancer patients and their families in a large region. I believe the recommendations of the Working Group are a significant

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Network News 2 October 2017

Advocacy for people affected by head and neck cancer - "Nothing About Us Without Us!

The Latin phrase is,  Nihil de nobis, sine nobis. The idea; that no policy should be decided by any representative, without the full and direct participation of those affected by that policy. This principle extends to national, local and sector policy making. It gives the opportunity for full participation from service users, consumers, and participants. It is a powerful concept for those often marginalised f

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Network News 18 September, 2017

Responding to patients' post treatment concerns

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As I recover from my own surgery, I read the Facebook discussions of our members. One topic that continues to arise, and where patients, carers, and family express dissatisfaction, is the period of time where patients are post treatment. Concerns expressed cover issues of psychological support, dental care and rehabilitation, surveillance of ongoing health and well being, access to services, and clinicians, and the role

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Network News, Monday 4 September

Congratulations to our 100th website member, Emma Wilkins of Staffordshire.  We are very pleased that our site has gained so much traction after only 10-11 months. Most of our discussion is over on our closed Facebook group, but the website is doing well too, in terms of viewer-and membership. 

Welcome also to our 101st member, Mere Manning of Napier. Remember that you are all more than welcome to comment under our blog posts or join our forum. 

To Auckland members, a further reminder that this

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Happy with your treatment experience?

Please share your thoughts on your recent treatment experience. This can be at any stage of your cancer journey, pre treatment, treatment, post treatment, and survivorship. 

You can take our survey as many times as you like, and we encourage you to have your family/whanau and carers share their thoughts as well. Click the link to share your thoughts.

https://www.surveymonkey.com/r/PatientNZ

 

 

Cancer Dictionary