Our Facebook Group Head & Neck Cancer Support

News

Other (76)

Continuing our weekly round-up of general health news with one outlier, a story about a computer winning a debate with humans. I mean this could be about health, because health is increasingly using AI and it was too good to omit.

Eggs. If you are old like me, you will remember the brilliant "Go to work on an egg" campaign created by UK novelist…

Read more…

Hope for dry horrors?

You know the feeling. You forgot your water bottle so you dash into the dairy to get a new one. You’re annoyed because bottled water is expensive and you have five empty bottles stashed at home.

When you approach the shopkeeper, you can barely talk because your tongue is stuck to the top of your mouth.

You kick yourself for coming out…

Read more…

Tuesday Health News, 29 May

There's a lot going on in the health world, in New Zealand not all of it good with nurses about to strike unless the latest offer is accepted, Middlemore problems continuing and dental care too expensive for many citizens to afford. We promise we will share good news when it hits the headlines but for today ...

Proposed nurses strike (we…

Read more…

Dear member,

On 12th June, speech languages therapists from across the northern region are meeting with consumer representatives to discuss & draft a care pathway that ensures people with head & neck cancer across Auckland & northland can access the best speech therapy support we can offer, particularly after cancer treatment is finished. We would love to hear from you…

Read more…

Health Literacy Symposium

 

Two nervous, tui clad committee members delivered a 15 minute presentation at the inaugural Health Literacy Symposium at North Shore Hospital on 24 May. 

Tammy and I spoke about our inspiration, the power of visual images to inform people, the benefits of online support groups like our closed Facebook group, our website and our desire…

Read more…

Thyroid cancer, a patient's story

 

Thyroid cancer comes loosely under the heading of head and neck cancer or is at least treated by the same ENT/ORL surgeons who treat us. I believe that most thyroid cancers are very curable. I think this is an interesting story of how one person coped with it.

Many thanks to Mary for sharing her story with us.

About…

Read more…

World Head and Neck Cancer Day reminder

Now is time to have another look at the newsletter Olwen and I made last year to mark World Head and Neck Cancer Day on 27 July. 

It was our first WHNCD and we held a stall at North Shore Hospital as well as linking with private providers throughout the city and with people all over the world. 

This year there will be more events throughout New Zealand and for Aucklanders a stall on Level 5 of Auckland City Hospital on 25 July. We will make that whole week a dedicated…

Read more…

New Zealand Herald Article

Tena koutou,

As you know there is an article in the New Zealand Herald investigating the Head and Neck Cancer service in Auckland. The Network has responded to questions from the NZH. I am enclosing our full statement below.

It is important at this time that no one feels alone or distressed. If anyone is distressed by the media attention or feels…

Read more…

Tuesday News, 1 May

There is just too much health news going on to NOT restart our Tuesday Health News. This is about health in general. 

Does the Minister of Health, David Clark, have the worst job in New Zealand at the moment?  This story is about the much needed end to the GP fee problem we wrote about last year. Depending on where you live, you might pay $60 to go to the GP or $15.00. It's a funding formula that is built into the system and is going to be a headache to change.…

Read more…

Bob Watt is one year out from this head and neck cancer, so clearly shown in his PET scan. Bob is in Southland and had 30 treatments via radiation and 6 (once a week) of carboplatin to treat both tumours which were diagnosed as Stage IV T1 N2a HPV positive. He is well now and the medical team don't want to give him another scan until the 3 year…

Read more…

New support forum

 

We have updated our forum. Because 99% of our discussion is in our closed Facebook group, the forum has never really taken off apart from with a very small number of people, mainly committee members. Some of us are experienced users of online cancer forums like the Oral Cancer Foundation and Mayo Clinic Connect but we have reluctantly* conceded…

Read more…
RSS
Email me when there are new items in this category –

Happy with your treatment experience?

Please share your thoughts on your recent treatment experience. This can be at any stage of your cancer journey, pre treatment, treatment, post treatment, and survivorship. 

You can take our survey as many times as you like, and we encourage you to have your family/whanau and carers share their thoughts as well. Click the link to share your thoughts.

https://www.surveymonkey.com/r/PatientNZ

 

 

Donations are always welcome

Donate via Givealittle

Or, you can put a little bit of money in our Kiwibank account!

38-9017-0819902-00

Upcoming Events

Cancer Dictionary