First let's start with a good news story about Christine Brown who has had major facial reconstructive surgery. Her story shows the skills that exists in our…
We saw it play out on RNZ and elsewhere: a war of words between John Campbell of Checkpoint and the Minister of Health about prostate cancer waiting times. Eventually there was an apology from the Southern DHB!
The embattled minister also told a group of bemused cancer…
We all want to live in hope. Sometimes hopes for survival are dashed if the cancer has spread too far. Can there be any hope then? Not in the narrow sense of the word maybe but there are still many things we can hope for. We might have years; we might be able to live with the cancer.
We can hope for good days, for good care, for a chance to make peace with life, to achieve a goal or fulfil a dream. We can hope for those few more good months or years where we can fulfill what we…
Fred's partner, Olwen, tells Fred's story.
It was mid 2015. Fred (68) was a bit irked. He had a sore on his tongue at the side near the back. Eating chocolate hurt it and it was getting annoying. He…
One of our members, Bernard, speaks in the video within this Nelson Mail article. He and his fellow throat cancer survivor speak out about the challenges of finding a new life after cancer and the need for males to be vaccinated against HPV. …
The head and neck cancer patients and carers I met at the Auckland Support Group in 2014 were pretty tough and staunch. I'd attended other support groups where there were tears and tender feelings but the head and neckers were quiet about their feelings and just wanted to learn more about the disease and enjoy the feeling of being silently supported. I don't know why our group is still quite matter of fact in its approach to cancer; maybe it is because we tend to be in an older age group…
Here is another WHNCD event in Auckland next week.
Gillies Hospital, a Southern Cross hospital in Epsom, is having two WHNCD events.
On the day itself, 27 July, they are having a staff red shirt fundraising day.
Prior to that, on 24 July from 6 pm til 8 pm, they are holding a Head and Neck Forum for General Practitioners.
The following topics will be covered
- Thyroid Ultrasound by Dr John Chaplin
- Using a Robot for Head and…
Multidisciplinary meetings, those panels we front up to after diagnosis. A room full of doctors and other health professionals who are going to decide our treatment and hence our fate. I've been to two: in the first there was a semi-circle of clinicians standing around the edges of the room and my…
The care packs are designed to make new patients aware that they don't have to face head and neck cancer alone.
Shane was diagnosed with Baso-Squamous Cell Carcinoma, a variety of head and neck cancer that started on the skin. His disease has been persistent but he has risen above it each time as a result of complicated surgery (nerve grafts and gold weights) and his own strength and courage. He had a difficult path to diagnosis which goes to show that sometimes the patient is the expert.
An interesting term I have run into during my cancer journey…
This is the second part of the stories of late diagnosis collected and collated by Olwen Williams. These two illustrate how pretty obvious signs of cancer can be missed until it is too late for an easy solution.
As we build up to WHNCD, we will publish more stories about aspects of the cancer to raise awareness.
What are the psychological effects of head and neck cancer?
We were privileged to hear a talk by Sandy Cavell, then of CMDHB on 4 June, 2015.
Sandy Cavell, health psychologist at the ORL module at the Manukau Superclinic, was our speaker today. Sandy has conducted a lot of research into the psychological effects of this cancer, including into “unmet needs” and “benefit findings”. Sandy barely got through her slideshow…
Thank you to everyone who took the time to complete our questionnaire. Thanks to everyone who shared the link, or coerced their partner. This is an authentic, credible dataset. From here we can analyse the information, and prioritise our work. Look out for our summaries, as they are published here over the next few weeks. We all have much to learn, and it starts here with quality information for…
39 people have completed our survey. Great work! The survey closes at 5pm Friday, so make sure your thoughts count. …
Oral 7 offers us these products (see PDF) at cost price. They are very expensive in New Zealand otherwise. Unfortunately, you have to order through me because Tristar, the distribution company, is a wholesale outfit and cannot take individual orders. We don't make any money on this scheme but feel it is a valuable service for the people who like these…
Here are some instructions and information about using Oral 7 mouth care products. I have put these together after talking with the company rep, an oral medicine specialist and people on the Oral Cancer Foundation.
Biotene used to be the go-to product for dry mouth sufferers. I used it myself when other toothpastes made my mouth sting. This was about 15 years ago. I can’t be sure of the time frame. Then Biotene became unavailable in New Zealand.…
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