Our Facebook Group Head & Neck Cancer Support

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Bob Watt is one year out from this head and neck cancer, so clearly shown in his PET scan. Bob is in Southland and had 30 treatments via radiation and 6 (once a week) of carboplatin to treat both tumours which were diagnosed as Stage IV T1 N2a HPV positive. He is well now and the medical team don't want to give him another scan until the 3 year…

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New support forum

 

We have updated our forum. Because 99% of our discussion is in our closed Facebook group, the forum has never really taken off apart from with a very small number of people, mainly committee members. Some of us are experienced users of online cancer forums like the Oral Cancer Foundation and Mayo Clinic Connect but we have reluctantly* conceded…

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Meetings Update

Meetings are taking place all around New Zealand. We will update you on the Palmerston North, Nelson and Invercargill meetings in due course. Meanwhile, here is a summary of two recent NZ meetings. 

Christchurch Head and Neck Living Well Group 5th April Meeting

Swallowing and Voice Issues

Last Thursday Christchurch held its 6 weekly meeting with a large gathering of 15 patients and caregivers in attendance. An interesting and informative…

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Open Survey Results

The Network Open Survey opened for patient, carer, & family/whanau feedback on 3 March 2018. To date 19 people completed the survey.  This question asks patients+ to give their opinion as to how satisfied they are with various aspects of the head and neck cancer service in New Zealand. The questions are based on the requirements of the National Standards for Head and Neck Cancer 2013 (Draft).These percentages are the total of patients+ who reported they were satisfied or highly satisfied…
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This is the third instalment of Anne's story. This time it is about her radiotherapy treatment which was particularly hard for her because of the previous surgery. The aggressive nature of the cancer made extensive radiation necessary. 

Next step on my journey is radiation and I have been told it is imperative that I have it within a 3 month time frame and have been warned me that it will be brutal. It has to be very intense due to the fact my tumour was aggressive and…

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On Monday we published the first part of Anne Howe's amazing story covering the difficult path to diagnosis. Today we have the story of her two surgeries, one very long, one smaller to reconstruct her nostil. 

First Surgery

Professor Tan, from the Gillies Research Institute, had asked permission for the remainder of my tumour after the necessary part had been sent to pathology. I had no need for my tumour and…

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Anne's Story, Part 1, Diagnosis and MDM

Anne Howe is a much loved member of our Facebook group who lives in Dannevirke and gets her treatment in Palmerston North and at Hutt Hospital. Because her SCC tumour first looked like an abcess (pictured below) on her nose, Anne had a struggle to get a diagnosis. She hopes her story might help others. …

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Summer Sale! Painted rocks.

All around New Zealand and overseas, people are painting rocks and “hiding” them in parks, walkways and other public places. I saw one at the Auckland Botanic Gardens yesterday.

This is a healthy, arty new outdoor craze that does not involve Pokemon Go or much screen time but instead rocks, stones, paint, sealer and imagination.

When you find them, you replace them with your own painted creations - but put them somewhere else - on top of a ponga trunk is good. The ones you have…

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North and South's series on Keytruda

It's worth getting your hands on copies of the last two North and South magazines (Jan/Feb). Veteran journalist Donna Chisholm investigates the latest immunotherpy drugs, Pharmac, and the effect of non-supply of cutting edge drugs on New Zealanders with cancer.

In January's issue, HNC was mentioned. In February's it is more about melanoma and funding formulae. The third part will be in March. North and South does not have an online version but articles are sometimes published on…

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