2017 (13)

Network News - 11 December 2017

Kia ora whanau,

Auckland Review see our post here. We are still seeking feedback until the New Year. So have your say. 

2147753?profile=originalA huge thank you to Ailsa Claire, Chief Executive of Auckland District Health Board, for launching the next phase of the review, and the new Oversight Group. Ailsa made it clear that patients are the first priority of the Head and Neck Service. 

Network News

Our Network continues to grow. We are New Zealand focused, and welcome new folk from around the world. We are a

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Auckland Review - Update December 2017

The Auckland/Northland review of regional head and neck services was completed this year. The Working Group was disestablished and a new Oversight Group established. The first meeting of the Oversight Group was held last week.

If you have not yet read the report you can do so here., and if you would like to provide feedback you can do so here here.

Alisa Clare, Chief Executive of the Auckland District Health Board, launched the new group. She outlined the Chief Executives/Chief Medical Officer

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Network News - Monday 27 November 2017

Ata marie whanau,

Kia ora whanau,

The Auckland Review of Head and Neck Services

mindreaderedited.jpg?width=250None of us are mind readers. And, this I know is true, I cannot see the future. So for the Network to accurately represent your interests in treatment, care and support, we need your help. Please read the report from the Auckland Review of Head and Neck Service and take our survey. You are welcome to make any comments under each heading. Your feedback is anonymous, and we will use it to continue to advocate for

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Network News - Monday 13 November 2017

Kia ora whanau,

EPatient Dave Visit

It was a great honour to meet Dave de Bronkhart. Dave was a guest of the Waitemata DHB. He spoke to WDHB as part of the CEO lecture series. He kindly shared his time with a smaller workshop which some of us from the Network attended.

Dave's story is moving and fascinating, as his cancer treatment was recommended not by his health care professionals, but through a online patient discussion board. Dave's treatment worked. He has a wonderful life traveling and

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Network News 18 September, 2017

Responding to patients' post treatment concerns


As I recover from my own surgery, I read the Facebook discussions of our members. One topic that continues to arise, and where patients, carers, and family express dissatisfaction, is the period of time where patients are post treatment. Concerns expressed cover issues of psychological support, dental care and rehabilitation, surveillance of ongoing health and well being, access to services, and clinicians, and the role

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From Auckland, New Zealand. The Head and Neck Cancer Survivors' Support Network, at Waitemata District Health Board's North Shore Hospital.

2147305?profile=RESIZE_1024x1024Tammy von Keisenberg read the opening statement. Read more here.


In Australia, Brad Keeling shares his story of throat cancer and HPV. http://www.abc.net.au/local/photos/2013/01/24/3675792.


Julie McCrossin, launching the Swallows book in Australia, with some kiwi stories. 


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Opening Statement World Head and Neck Cancer Day 2017


Tena koutou,

Kia ora from Auckland, New Zealand.

We, the Head and Neck Cancer Survivor's Support Network are first to recognise World Head and Neck Cancer Day 2017. We welcome all patient groups around the world to connect, support and advocate for those affected by head and neck cancer.

As the day begins we acknowledge the aims of the day - to promote the effective care and control of head and neck cancer.

To do that we can all join togeth

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Network News - 10 July 2017

21st-century.png?versionId=SaK87TZSUO9Puc4tkIvbfNg7k00etz14&width=350Who said this about the New Zealand health system? "We have a world-class health system but third class treatment, and we have the capacity to make a big difference. Not enough people with the greatest need are getting access to our services because we're stuck in a 19th-century view, but it's the 21st century."

Not me, and I do agree. It was Dr Lance O'Sullivan, New Zealander of the year, Far North GP and public health champion. (Evans, 2017)

He went on to say, "I don't think we should be hav

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HeadNeckNZ Questionnaire is Live


We invite you, your a family/whanau, and carers to work with us to improve outcomes of people affected by head and neck cancer.

We are asking for you to share in an anonymous questionnaire, your experiences and your thoughts. The reason we are asking for this information is so that the past can be used to inform the future.

There are many decisions to be made by health providers to ensure the treatment, care and support of people with head and neck cancer is safe, of good quali

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This initiative promotes free screening clinics for oral, head and neck cancer awareness week. We are looking at doing something similar in New Zealand. If you know of any clinician who would like to be involved, let us know. headandnecknetwork@gmail.com If you specialist is not offering this for Head and Neck Cancer Day (27 July, 2017) then you might like to invite them to get involved. 

The Head and Neck Cancer Alliance (HNCA) is hosting its Annu

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Cancer Dictionary