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Network News - Monday 13 November 2017

Kia ora whanau,

EPatient Dave Visit

It was a great honour to meet Dave de Bronkhart. Dave was a guest of the Waitemata DHB. He spoke to WDHB as part of the CEO lecture series. He kindly shared his time with a smaller workshop which some of us from the Network attended.

Dave's story is moving and fascinating, as his cancer treatment was recommended not by his health care professionals, but through a online patient discussion board. Dave's treatment…

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Network News 2 October 2017

Advocacy for people affected by head and neck cancer - "Nothing About Us Without Us!

The Latin phrase is,  Nihil de nobis, sine nobis. The idea; that no policy should be decided by any representative, without the full and direct participation of those affected by that policy. This principle extends to national, local and sector policy making. It gives the opportunity for full participation from service users, consumers, and…

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Network News - 7 August 2017

New Zealand effort outstanding for World Head and Neck Cancer Day

Our WHNC day was a huge success. I am delighted to continue hearing about events, connections, donations, and general fun and camaraderie well after the day. Thank you to all those members, and our community, who gave up their time to raise awareness, education about Head and Neck Cancer. If you missed some of the action you can catch up here.…

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Opening Statement World Head and Neck Cancer Day 2017

 

Tena koutou,

Kia ora from Auckland, New Zealand.

We, the Head and Neck Cancer Survivor's Support Network are first to recognise World Head and Neck Cancer Day 2017. We welcome all patient groups around the world to connect, support and advocate for…

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The disfiguring effects of treatment are well known to many patients who have been through it - scarring, missing teeth, muscle wastage and more. The story below however does suggest some help with one of the common effects - lymphedema - could be on the way.

Meanwhile consider:
The Prince from Cinderella must have had a serious foot fetish to not remember any other discernible characteristic about her or maybe the only difference between passion and…

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[Questionnaire Update] We did it!

Thank you to everyone who took the time to complete our questionnaire. Thanks to everyone who shared the link, or coerced their partner. This is an authentic, credible dataset. From here we can analyse the information, and prioritise our work. Look out for our summaries, as they are published here over the next few weeks. We all have much to learn, and it starts here with quality information for…

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Weekly Wednesday - 12 April 2017

Losing the sense of taste (and probably the appetite as well) is just one of the many side effects of radiation treatment. it’s annoying, but for a chef and restauranteur it can be a major problem. However as the story below indicates things can get better. Meanwhile consider; "The customer is always right" is arguably one of the most untrue statements used by humanity. Or maybe Humans are hiding the good food from all of our dogs, and they know.
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Wednesday Weekly - 22 March 2017

Having come through diagnosis, treatment and, hopefully, recovery the question facing most survivors is; "What’s next?’’  There’ll be physical effects to adapt to, probably psychological ones as well,  reactions of friends and strangers to cope with and much more.…

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Cancer Dictionary