network news (14)

Network News - 5 March 2018

Kia ora whanau,

2147909?profile=originalWe know that some people do not "do" Facebook, and are unlikely to sign up to our website. These folk need to connect and receive support, so we are taking a new approach. We are introducing What's App, the Smartphone app, that connects people without the need for the Internet. We think this might suit some of our men. It's a simple way of knowing what's going on that doesn't require constant communication and attention. To get started just text me +64 0212130178 and we will con

Read more…

Network News - 19 February 2018

Kia ora whanau,



Global Cancer Report 

The Cancer Societh has responded to the publication of Global Cancer Statistics in the January 2018 Lancet medical journal. The Society is calling for major changes to cancer planning and coordination in New Zealand.

The global study analysed the records of 37.5 million patients diagnosed with 18 cancers from 2000 to 2014. Head and Neck cancers were not included in the study.  Cancers covered were oesophagus, stomach, colon, rectum, liver,

Read more…

Network News - Monday 5 February 2018

Kia ora whanau,




6 February is a very special day for New Zealanders. All over the world we are celebrating the signing of the Treaty of Waitangi (te tiriti O Waitangi) in the Bay of Islands on 6 February 1840. It is from across the bay, from the treaty grounds I write this Network News. There is much excitment in the air as we prepare for a day of celebrations, song, dance, and plenty of food! So Kiwis, get out there, and enjoy the day.




Our Network - update

2147783?profile=RESIZE_320x320Over the last few

Read more…

Network News - 11 December 2017

Kia ora whanau,

Auckland Review see our post here. We are still seeking feedback until the New Year. So have your say. 

2147753?profile=originalA huge thank you to Ailsa Claire, Chief Executive of Auckland District Health Board, for launching the next phase of the review, and the new Oversight Group. Ailsa made it clear that patients are the first priority of the Head and Neck Service. 

Network News

Our Network continues to grow. We are New Zealand focused, and welcome new folk from around the world. We are a

Read more…

Network News - Monday 13 November 2017

Kia ora whanau,

EPatient Dave Visit

It was a great honour to meet Dave de Bronkhart. Dave was a guest of the Waitemata DHB. He spoke to WDHB as part of the CEO lecture series. He kindly shared his time with a smaller workshop which some of us from the Network attended.

Dave's story is moving and fascinating, as his cancer treatment was recommended not by his health care professionals, but through a online patient discussion board. Dave's treatment worked. He has a wonderful life traveling and

Read more…

Network News - 15 October 2017

Kia ora whanau,

The Auckland Review of Head and Neck Services

2147570?profile=RESIZE_480x480As you may know, we are part of a Working Group reviewing the Head and Neck Service for Auckland, Counties-Manukau, Northland and Waitemata District Health Boards. As a Network, we value the opportunity to be part of the Working Group. It is an opportunity to deeply engaged with the issues faced by head and neck cancer patients and their families in a large region. I believe the recommendations of the Working Group are a significant

Read more…

Network News 18 September, 2017

Responding to patients' post treatment concerns


As I recover from my own surgery, I read the Facebook discussions of our members. One topic that continues to arise, and where patients, carers, and family express dissatisfaction, is the period of time where patients are post treatment. Concerns expressed cover issues of psychological support, dental care and rehabilitation, surveillance of ongoing health and well being, access to services, and clinicians, and the role

Read more…

Network News - 20 August 2017

Patient Communciation with Clinical Services


If you are a person affected by head and neck cancer, or you take care of someone affected, or you have a friend or a family member, you may have had some dissatisfaction with communication with health professionals. Research from a Auckland cancer group indicates people experience a range of communication issues including, being scared, and frustrated, exhausted from telling their story over and over again, being unclear about the processes and

Read more…

Network News - 3 July 2017


Since our last Network News one of our members, Udaya Kovvuru, passed away on 21st June 2017. We met Udaya, and his wife Shoba last year after his surgery. We have followed his journey through our Facebook group. Udaya, was fortunate to have wonderful support from Shoba. She is a wonderfully generous and wise person, sharing their story, and supporting many others. Udaya, had the benefit of hospice care over the last weeks of his life, and we thank everyone for their care and support. Shoba, o

Read more…

Network News - 22 May 2017

Kia ora everyone


You may have heard for the Johari Window. The Johari window is a technique used to help people better understand their relationship with themselves and others, which was created by psychologists Joseph Luft (1916–2014) and Harrington Ingham (1916–1995) in 1955. 

There are two key ideas behind the tool:

  1. That you can build trust with others by disclosing information about yourself.
  2. That, with the help of feedback from others, you can learn about yourself and come to terms with
Read more…

Network News - 8 May 2017


Kia ora everyone


We all encounter various organisations and agencies in our health journey. It's hard to know how well these organisations are performing. Are they meeting their targets, serving their patients, and keeping up with the changing world? When you think about the agencies you interact with you might like to consider three things.


1. An effective organisation will have good leadership. The leader is not afraid to be responsible, accountable and honest. A truly good leader connect

Read more…

Network News 24 April 2017

Kia ora everyone,

It is hard to believe we have completed a year in the Network. One complete cycle done. It is always hard creating the systems and processes on the first cycle. Some things work, and some don't. We have to go back, and try again. And then there are no guarantees. As this is our last post to the website with our present committee, I would like to thank everyone that has helped us this year, Kevin, Alison, Suzanne, Adam, Olwen, Narelle, Esther, Pat, Kris and Tammy. All of yo
Read more…