Network News - 10 December 2018

Kia ora tatou, 

this week our Network News .....celebrates a year of connecting, with a great new tool on our website to Chat with others. We update you on our Auckland Support Group December meeting, and invite everyone to join our Auckland evening meetings in 2019. We have an invitation for all head and neckers to participate in Awakening the Giants, Auckland, 2019. We share some new resources on adverse events, lung nodules, some ideas on changing ACC to cover head and neck cancer, and 6 wonderful episodes on a cancer journey from John Bluck. We have two great videos for you, giving hope. One is about the reconstruction of a young Australian woman's jaw, and one is a tough doctor who gives you advice on how to advocate for yourself. As always, our website is the place to go for all your news, resources, and support information. Be sure to check it our, and if you not yet a member, now is a good time!

Network News 

Final Auckland Support Group Meeting for 2018

Despite the awful weather, a fun time was had by all!

Auckland Support Group Meetings 2019

Here at the Network we seek to respond to head and neckers needs. One thing that has become apparent in Auckland is the need for a support group to meet outside work hours. Next year we will offer meetings in the day time and evening. These will alternate through the months of the year commencing in February. We look forward to meeting many more of our members and helping to provide connection with others and support through treatment and post treatment. 

You can view our schedule here.

Let's Chat!

In response to our mission to connect and support people affected by head and neck ccancer we are providing online chat for Network members.  This creates real-time, fun and easy communication possibilities. If you are logged in to the our website  You can chat to other members in other parts of New Zealand, who share the same cancer experience as yourself. We are hopeful that this Chat feature will encourage more peer to peer support.

The Chat feature allows you to participate in a live chatroom and private chats. The Chat provides you with additional options:

  • Customizable notifications
  • Message counter
  • Ability to create and manage your groups
  • Ability to send files

You can find out more here.....

 An Invitation to Awakening Giants - Free!

The Head and Neck Support Network has been approached by an American/Ecuador based Film production company called Legacy Life Productions / AwakeningGiantsTV. They will be in Auckland for a short period of time (16th through the 20th January 2019) and warmly invite you to a one-day event called INSPIREAuckland, as part of their global INSPIREMIC Series

INSPIREMIC events are produced in each country where they film their positive-content tv show. In Auckland, it consists of a one-day FREE inspirational and empowerment event, as a gift to the city. This day resembles a 'TED' event, where up to twenty speakers and skilled entrepreneurs in a variety of fields ranging from business expansions, trauma healing, relationship work, empowerment skills, medical and therapeutic modalities, life and executive coaching/mentoring, and non-profit management, provide short, impactful talks and engage the audience in fun, accelerated learning, and real world tools for better living, and a more sustainable future. This is a wonderful empowerment-focused and networking rich event.

This event will be held at…
Venue: Amora Hotel, 100 Greys Avenue, Auckland Central Business District
Date: Friday, January 18, 2019
Time:  Check-in at 12:30pm / Event: 1pm to 6pm (Come for whole event or partial - it's your choice!)
Registration:  Seating is limited so register today!  Please email and include your name, non-profit organisation, and number of guests in your group attending.  You will receive a confirmation upon registration.
You may also see two previous events here and here
Open to you and those who you know may be interested to attend and  learn and meet with a positive delegation of international entrepreneurs.

New Support Resources for You

We have some news and resources:

John Bluck's In sickness and in health (6 episodes)


What does having a nodule on your lung mean?

If this has happended to you, you will find this of value....Read more

Head and Neck Cancer National News 

Review of the Charities Act 2005.
This is the first time since 2005 that the Charities Act has been reviewed and it is vital that charities and the community sector’s voices are heard. Please complete the survey, which will take around 20 minutes. Please also share a link to the survey widely within your networks and on social media. Survey link:
If you are connected to more than one group or organisation (whether a registered charity or not), you are welcome to fill the survey out multiple times, giving the information separately for each one. The more completed questionnaires we receive, the stronger the data is that we can gather for input to the review of New Zealand’s Charities laws.


Head and Neck Cancer International Connections

A good news story from across the ditch!


Advice From Cancer Survivor Sajjad Iqbal on Becoming an Empowered Patient

Sajjad Iqbal used his expertise in the medical field to diagnose his own deadly cancer of the parotid glands (salivary glands), which all his physicians had failed to recognize. He speaks on his personal perseverance and commitment to being an empowered patient. Dr. Igbal has now dedicated his life to helping other patients become empowered and in control of their care.

Watch now as he shares his experience. You can also purchase his book at Swimming Upstream.

View more programs featuring  and 



Save The Date!


Looking for answers or support?

The Cancer Society knows that going through cancer is tough and can raise many questions. They want you to know that they are here for you. From help with getting to your medical appointments or understanding your treatment options, to offering practical support, they can help.

The Cancer Society can help you find answers to questions about your treatment and its effects. There are pages of cancer information online and in booklets, and they are always available for emotional support when things get tough.

For answers, support or just a chat, call us free on 0800 CANCER (226 237) Monday to Friday, 8.30am–5pm. 

 Thank You to our Corporate and Community Partners

Be sure to add our email address to your address book or safe senders list so our emails get to your inbox.





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Diana Ayling

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You can take our survey as many times as you like, and we encourage you to have your family/whanau and carers share their thoughts as well. Click the link to share your thoughts.



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