NEWS

Network News 12 November 2018

Kia ora tatou, 

This week our Network News is chocker full. We have a new activity where we asked you to connect with five new people on the website. We have some new support resources, the opportunity for you to take part in an international survivorship survey, and some information on the vexed problem of "informed consent". Finally, you get to know our Chair, Diana Ayling as she takes on the 31 question Challenge! Happy reading...

Network News

Be Part of the Network 500

We have 186 members, and you hardly know each other. So this month we are setting you a challenge. We want 100 people to introduce themselves to the Network. And we would love it if 5 people responded to the post. That why we with have 500 interactions. We are calling it the Network 500!

As part of this challenge you might like to contact people who have had a similar diagnosis to yourself or someone who lives close to you.

Just click the ABOUT US, then MEMBERS TAB and find our who makes up our community. All you need to do is LOGIN at the top right of the screen. If you have forgotton your username or password, you can retrieve them by following the instructions. Then follow the link below to introduce yourself. We have some fun questions to get your started. Feel free to tell us more. http://headandneck.org.nz/welcome-forum/welcome-please-introduce-yourself

Meet Your Committee

Over the next few months we are giving you some insight into our committee. Diana Ayling, your Chair is the first to answer 31 Questions. Read more here....

New Support Resources for You

You may have noticed we have revamped our website to ensure it is more useable and accessible. We have four new tabs. Just Diagnosed, Wellness and Healing, Food and Nutrition, and Things to Know.

As this is a community website anyone can post an article to share, and we encourage you to do so. If health professionals have information to share please feel free to add it under the tabs or pages. 

Thank you to all those who have enlivened our website over the last few weeks with your comments, and shared resources. It is important the website reflects the views and thinking of a range of people. 

This week our new resource is on the Fear of Recurrence. Very good value resource from the USA. http://headandneck.org.nz/coping-with-cancer/fear-of-recurrence  

Head and Neck Cancer National News 

The Problem of Informed Consent

You may be aware that there is concern by medical students about informed consent. It is a requirement under the Code of Patient Rights, that permission must be given my patients when health care students observe or participate in treatment, care and support. If students are involved in your treatment you must give written permission.  You can hear the recent discussion on this topic here. https://www.radionz.co.nz/national/programmes/ninetonoon/audio/2018668771/student-doctor-concerns-over-informed-patient-consent 

There is another article of interest based on the same theme. It appears many of us do not realise those health care people treating us are in training. https://healthcentral.nz/few-kiwis-know-their-surgeon-is-likely-a-trainee-finds-study/

If you want to share your views on this topic, we have opened a Forum here. You are welcome to share your experiences and thoughts. The Forum is closed to members only and not viewable by the public. Informed Consent Forum

Head and Neck Cancer International Connections

Survivors of Head and Neck Cancers Have an Elevated Risk for Suicide

AJMC.com

A recent study published in Cancer highlights the difficult survivorship issues thousands of patients with head and neck cancer must face. The authors highlight that these severe challenges cause HNC survivors to be “twice as likely to die by suicide that survivors of other cancers.” These are sobering statistics that will hopefully lead to more interventions and support services for HNC patients and survivors.

Read More »

From the USA National Coalition for Cancer Survivorship

The purpose of this survey is to better understand the needs and experiences of cancer patients. This survey is being conducted by Edge Research on behalf of the National Coalition for Cancer Survivorship (NCCS). Many of the questions will be about your experiences during and after cancer treatment, and your feedback will help inform NCCS’ services and outreach. This survey is for research purposes only. Your information and opinions are confidential. Nothing you say will be attached to your name, and your responses will only be reported together with the responses of others. The survey should take about 15 minutes to complete. Click here to access...

New Members

Mary-Anne Dillon, Auckland. Mary-Anne had cancer of the tonsils. If you have had a similar experience you may like to contact her by clicking the link. 

Save The Date!

 

Looking for answers or support?

The Cancer Society knows that going through cancer is tough and can raise many questions. They want you to know that they are here for you. From help with getting to your medical appointments or understanding your treatment options, to offering practical support, they can help.

The Cancer Society can help you find answers to questions about your treatment and its effects. There are pages of cancer information online and in booklets, and they are always available for emotional support when things get tough.

For answers, support or just a chat, call us free on 0800 CANCER (226 237) Monday to Friday, 8.30am–5pm. 

 
 Thank You to our Corporate and Community Partners
 
 
 
 
 
 
 

Be sure to add our email address to your address book or safe senders list so our emails get to your inbox.

E-mail me when people leave their comments –

Diana Ayling

You need to be a member of Head & Neck Cancer Support Network to add comments!

Join Head & Neck Cancer Support Network

Happy with your treatment experience?

Please share your thoughts on your recent treatment experience. This can be at any stage of your cancer journey, pre treatment, treatment, post treatment, and survivorship. 

You can take our survey as many times as you like, and we encourage you to have your family/whanau and carers share their thoughts as well. Click the link to share your thoughts.

https://www.surveymonkey.com/r/PatientNZ

 

 

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