Kia ora tatou,
This week our Network News is chocker full. We have a new activity where we asked you to connect with five new people on the website. We have some new support resources, the opportunity for you to take part in an international survivorship survey, and some information on the vexed problem of "informed consent". Finally, you get to know our Chair, Diana Ayling as she takes on the 31 question Challenge! Happy reading...
Be Part of the Network 500
We have 186 members, and you hardly know each other. So this month we are setting you a challenge. We want 100 people to introduce themselves to the Network. And we would love it if 5 people responded to the post. That why we with have 500 interactions. We are calling it the Network 500!
As part of this challenge you might like to contact people who have had a similar diagnosis to yourself or someone who lives close to you.
Just click the ABOUT US, then MEMBERS TAB and find our who makes up our community. All you need to do is LOGIN at the top right of the screen. If you have forgotton your username or password, you can retrieve them by following the instructions. Then follow the link below to introduce yourself. We have some fun questions to get your started. Feel free to tell us more. http://headandneck.org.nz/welcome-forum/welcome-please-introduce-yourself
Meet Your Committee
Over the next few months we are giving you some insight into our committee. Diana Ayling, your Chair is the first to answer 31 Questions. Read more here....
New Support Resources for You
As this is a community website anyone can post an article to share, and we encourage you to do so. If health professionals have information to share please feel free to add it under the tabs or pages.
Thank you to all those who have enlivened our website over the last few weeks with your comments, and shared resources. It is important the website reflects the views and thinking of a range of people.
This week our new resource is on the Fear of Recurrence. Very good value resource from the USA. http://headandneck.org.nz/coping-with-cancer/fear-of-recurrence
Head and Neck Cancer National News
The Problem of Informed Consent
You may be aware that there is concern by medical students about informed consent. It is a requirement under the Code of Patient Rights, that permission must be given my patients when health care students observe or participate in treatment, care and support. If students are involved in your treatment you must give written permission. You can hear the recent discussion on this topic here. https://www.radionz.co.nz/national/programmes/ninetonoon/audio/2018668771/student-doctor-concerns-over-informed-patient-consent
There is another article of interest based on the same theme. It appears many of us do not realise those health care people treating us are in training. https://healthcentral.nz/few-kiwis-know-their-surgeon-is-likely-a-trainee-finds-study/
If you want to share your views on this topic, we have opened a Forum here. You are welcome to share your experiences and thoughts. The Forum is closed to members only and not viewable by the public. Informed Consent Forum
Head and Neck Cancer International Connections
A recent study published in Cancer highlights the difficult survivorship issues thousands of patients with head and neck cancer must face. The authors highlight that these severe challenges cause HNC survivors to be “twice as likely to die by suicide that survivors of other cancers.” These are sobering statistics that will hopefully lead to more interventions and support services for HNC patients and survivors.
Mary-Anne Dillon, Auckland. Mary-Anne had cancer of the tonsils. If you have had a similar experience you may like to contact her by clicking the link.
Save The Date!
Looking for answers or support?
The Cancer Society knows that going through cancer is tough and can raise many questions. They want you to know that they are here for you. From help with getting to your medical appointments or understanding your treatment options, to offering practical support, they can help.
The Cancer Society can help you find answers to questions about your treatment and its effects. There are pages of cancer information online and in booklets, and they are always available for emotional support when things get tough.
For answers, support or just a chat, call us free on 0800 CANCER (226 237) Monday to Friday, 8.30am–5pm.
Be sure to add our email address to your address book or safe senders list so our emails get to your inbox.