this week we ask you to respond to our email to you. Your committee are focused on meeting your needs. We need to know from you what are your important, and urgent needs. Over the next week we will email each of you to find out how you are doing, and how we can help you or your family/whanau and friends. Please respond to the email so we can take action on your behalf.
A Sensitive and Real Issue
We have a very strong community of people affected by head and neck cancer. We are seeking your guidance on how to manage a very sensitive matter. Some members of our Network have passed. Their pages are still visable on our site. What should we do? Leave the pages, as a memorial to our members? Hide the pages? Ask the member's family/whanau for advice? We would like to have a conversation with you, our members on this issue. We will take your guidance. You can find the Forum here. Remember, you will need to login to comment.
Continence issues from Carers NZ
Continence issues affect 1.1 million New Zealanders. Carers NZ want to hear from you and your families, to help put together a national strategy for action.
Bladder and/or bowel problems affect one in four New Zealanders of all ages, and from all walks of life. The physical, emotional, and financial impact can be devastating for people living with incontinence. During the months of September/October, we will be gathering information on how it affects people and their families in New Zealand.
We are taking action on this because we want to formulate ways to offer better solutions and ways for New Zealanders. Urinary incontinence has recently been identified by the World Health Organisation as a major health issue in developed and developing nations. It is time for health agencies, especially the Health Funding Authority, to develop a national strategy to address this.
Currently, there are no national written standards for continence services in New Zealand or comprehensive training in the assessment and management of urinary incontinence. The financial cost for urinary incontinence has been estimated at 3,565 US dollars per year per person.
The information gathered will be used to raise awareness and seek solutions that work best for everyone, so please take the time to participate in our survey.
Increasing our Community Engagement with our Site
We have made some changes to our site, to give you the community, greater involvement.
*** Create an event. You can go to our upcoming events page and add a support group meeting or other event. http://headandneck.org.nz/upcoming-events
*** We are encouraging members to create new groups of interest. You can do that here http://headandneck.org.nz/groups
All you need to do is use the + button on the top right of your screen.
Keeping Support Close to Home - Our Community Groups http://headandneck.org.nz/groups
We are encouraging local members to work with their DHB staff, and the Cancer Society in the local area to connect, and support with members. If you are keen to take on this role, and manage the local community group, please let us know. We will give you administrative rights, and you can contact/message the members of the group, post news, and set up discussions/forum. This is a great way to build a thriving local support network. We are particularly keen to see new members welcomed into their local community group. Whatever you need to do this, we will try to provide.
SAVE THE DATE
Auckland Support Group meeting
Your Patient Experience Can Help Advance Research and Treatments
Did you know that your own experience as a cancer patient, and especially your opinions about treatments and side effects, can help shape the future of the patient experience for other head and neck cancer patients?
The 2018 Second Edition of the Australian Head and Neck Cancer Patient & Carers Book was launched in July 2018 at the ANZHNCS Conference in Melbourne. The book is a patient led initiative coordinated by former patient and Beyond Five Ambassador, Julie McCrossin, and fellow former patient Marty Doyle, coordinator of the Head and Neck Cancer Patient Support Group in Queensland.
The book shares many personal head and neck cancer stories from patients, family and carers from all over Australia and New Zealand. In addition, the book highlights some of the people who work in the head and neck multidisciplinary team who talk about important aspects of care at specific points in the head and neck cancer journey.
To order FREE hard copies of the 2018 Australian issue email: juliemccrossin@bigpond.
Looking for answers or support?
The Cancer Society knows that going through cancer is tough and can raise many questions. They want you to know that they are here for you. From help with getting to your medical appointments or understanding your treatment options, to offering practical support, they can help.
The Cancer Society can help you find answers to questions about your treatment and its effects. There are pages of cancer information online and in booklets, and they are always available for emotional support when things get tough.
For answers, support or just a chat, call us free on 0800 CANCER (226 237) Monday to Friday, 8.30am–5pm.
Be sure to add our email address to your address book or safe senders list so our emails get to your inbox.