Kia ora tatou,
this week our Network News shares changes to meetings of the Auckland Support Group, our Connect 500 project continues, we profile Eva McGauley, an inspirational head and necker who sadly passed away last week. There are lots of new support resources, and news. Read on...
Auckland Support Group Meetings 2019
Here at the Network we seek to respond to head and neckers needs. One thing that has become apparent in Auckland is the need for a support group to meet outside work hours. Next year we will offer meetings in the day time and evening. These will alternate through the months of the year commencing in February. We look forward to meeting many more of our members and helping to provide connection with others and support through treatment and post treatment.
Be Part of the Network 500
We are continuing with our Connect 500 project. We have 186 members, and you hardly know each other. So this month we are setting you a challenge. We want 100 people to introduce themselves to the Network. And we would love it if 5 people responded to the post. That why we with have 500 interactions. We are calling it the Network 500!
As part of this challenge you might like to contact people who have had a similar diagnosis to yourself or someone who lives close to you.
Just click the ABOUT US, then MEMBERS TAB and find our who makes up our community. All you need to do is LOGIN at the top right of the screen. If you have forgotton your username or password, you can retrieve them by following the instructions. Then follow the link below to introduce yourself. We have some fun questions to get your started. Feel free to tell us more. http://headandneck.org.nz/welcome-forum/welcome-please-introduce-yourself
New Support Resources for You
We have some news and resources:
Faster Cancer Diagnosis article from News Hub featuring Dr Rajan Patel, who will be known to Auckland head and neckers. http://headandneck.org.nz/news/fast-tracking-cancer-diagnosis
An episode of "Second Opinion" on head and neck cancer. http://headandneck.org.nz/news/a-second-opinion-episode-head-and-neck-cancer
An article in The Specialis about Oral and Maxillofacial Surgeon, Jessica Buchanan, at Greenlane, in Auckland. From The Specialist https://www.asms.org.nz/wp-content/uploads/2018/10/12089-The-Specialist-Issue-116-WEB.pdf
As this is a community website anyone can post an article to share, and we encourage you to do so. If health professionals have information to share please feel free to add it under the tabs or pages.
Thank you to all those who have enlivened our website over the last few weeks with your comments, and shared resources. It is important the website reflects the views and thinking of a range of people.
Head and Neck Cancer National News
Eva McGauley was a head and necker. At 15 she was diagnosed with nasopharyngeal cancer - a rare type of head and neck cancer. She had intensive chemotherapy and radiotherapy. Initially she was in remission. Later she learned the cancer had spread to her hip and a lymph node in her chest and the disease was terminal.
Eva slways wanted to make a difference. Eva’s wish was to help survivors of sexual violence. So she launched EvasWish in 2016, with the aim of raising $50,000 for HELP: Auckland, Support for Sexual Abuse Survivors - she ended up raising more than $70,000. But she didn't stop there, coming up with an idea for an online messaging service for young people affected by sexual violence in Aotearoa New Zealand.
That service, Safe to Talk, Kōrero mai, ka ora, was launched by Hon Carmel Sepuloni, Minister for Social Development, nationwide in June, following an initial trial in Canterbury. Eva’s determination to see the helpline launched will ensure that women across New Zealand have access to confidential, free support 24/7.
Eva and her work recieved wide recognition, including a KiwiBank New Zealander of the Year Local Hero Award 2016, Changemaker at the New Zealand Youth Awards 2017, the Youth Spirit Award at the Attitude Awards 2017, and as a finalist in the Wellingtonian of the Year Awards for 2018. She was also recently profiled in 200 Women – a book about inspiring women around the world. In their recent visit to New Zealand, Eva, met the Duke and Duchess of Sussex.
Eva passed away last week. I sure we will all respect her work, and her courage. You can access Eva's work here. https://www.evaswish.com/
Head and Neck Cancer International Connections
From the Swallows in the UK: A mother from Surrey has described how she "went into meltdown" after being diagnosed and treated for advanced head and neck cancer. https://www.getsurrey.co.uk/news/surrey-news/surrey-mother-describes-how-head-15380415
Save The Date!
Please bring along a small gift, under $10 for the Santa sack. Everyone is welcome including first timers.
Looking for answers or support?
The Cancer Society knows that going through cancer is tough and can raise many questions. They want you to know that they are here for you. From help with getting to your medical appointments or understanding your treatment options, to offering practical support, they can help.
The Cancer Society can help you find answers to questions about your treatment and its effects. There are pages of cancer information online and in booklets, and they are always available for emotional support when things get tough.
For answers, support or just a chat, call us free on 0800 CANCER (226 237) Monday to Friday, 8.30am–5pm.
Be sure to add our email address to your address book or safe senders list so our emails get to your inbox.