Network News 29 October 2018

Kia ora,

A Sensitive and Real Issue Resolved!
Thank you to those who provided comments on our sensitive issue. We have changed our joining process to include a question regarding your wishes. This will be available to all who join the Network. If you wish to update your profile and express your wishes, go to MY PAGE and OPTIONS (right side of the page) EDIT PROFILE. 

Support - what does it mean to you? 

In this post by one of our members "support" the value and nature of support is considered. Please share your thoughts on what support means to you by commenting at the end of the post.





Cancer Care at a Crossroads Conference: 31 January – 1 February 2019, Te Papa, Wellington, New Zealand


Bringing together the brightest minds and most influential personalities from across the cancer control continuum

Co-hosted by the University of Otago and the Cancer Society of New Zealand, supported by the NZ Society of Oncology and the Ministry of Health.

We invite you to join us in Wellington in 2019 for this special event. A welcome event will be held 5pm–7pm Wednesday, 30 January 2019.


Outdated public funding model failing NZ patients
Publicly funded modern medicines are out of reach for many patients in New Zealand according to a new report. The COMPARE 4 report shows New Zealand ranking the lowest out of 20 OECD countries for its market access to modern medicines.
New Zealand’s market access score of 12% is a long way from 19th placed Portugal. Read more at....





Auckland Support Group meeting 

Monday, November 5,
11:30am – 12:30pm
Domain Lodge
1 Boyle Cres, Grafton, Auckland 1023, New Zealand Our speaker is Muammar Abu Serriah, Oral and Maxillofacial surgeon.

Your Patient Experience Can Help Advance Research and Treatments

Did you know that your own experience as a cancer patient, and especially your opinions about treatments and side effects, can help shape the future of the patient experience for other head and neck cancer patients? 

We continue to have our Open Survey available to collect your thoughts, and experiences about your HNC treatment. If you feel you need to get something of your chest you can do so here.

Increasing our Community Engagement with our Site

We have made some changes to our site, to give you the community, greater involvement. 

*** Create an event. You can go to our upcoming events page and add a support group meeting or other event.

*** We are encouraging members to create new groups of interest. You can do that here

All you need to do is use the + button on the top right of your screen. 

Keeping Support Close to Home - Our Community Groups

We are encouraging local members to work with their DHB staff, and the Cancer Society in the local area to connect, and support with members. If you are keen to take on this role, and manage the local community group, please let us know. We will give you administrative rights, and you can contact/message the members of the group, post news, and set up discussions/forum. This is a great way to build a thriving local support network. We are particularly keen to see new members welcomed into their local community group. Whatever you need to do this, we will try to provide. 



Looking for answers or support?

The Cancer Society knows that going through cancer is tough and can raise many questions. They want you to know that they are here for you. From help with getting to your medical appointments or understanding your treatment options, to offering practical support, they can help.

The Cancer Society can help you find answers to questions about your treatment and its effects. There are pages of cancer information online and in booklets, and they are always available for emotional support when things get tough.

For answers, support or just a chat, call us free on 0800 CANCER (226 237) Monday to Friday, 8.30am–5pm. 

 Thank You to our Corporate and Community Partners

Be sure to add our email address to your address book or safe senders list so our emails get to your inbox.

E-mail me when people leave their comments –

Diana Ayling

You need to be a member of Head & Neck Cancer Support Network to add comments!

Join Head & Neck Cancer Support Network

Happy with your treatment experience?

Please share your thoughts on your recent treatment experience. This can be at any stage of your cancer journey, pre treatment, treatment, post treatment, and survivorship. 

You can take our survey as many times as you like, and we encourage you to have your family/whanau and carers share their thoughts as well. Click the link to share your thoughts.



Cancer Dictionary