Your Head and Neck Cancer Support Network is working hard for you
Brian Sheppard is a cancer survivor, having experienced cancer in the tongue in 2005. This was successfully treated with surgery, reconstruction and radiotherapy.
Since 2011, he has been a consumer representative for the Central Cancer Network and a Cancer Connect volunteer for the Cancer Society. On the Central Cancer Network, Brian has served on a number of working groups, including those for the Government’s Faster Cancer Treatment initiative and is currently a member of the CCN Governance Board and Cancer Consumers New Zealand (CCNZ).
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Get Involved and Support Our Efforts
YOU have the power to help raise awareness of HNC and advocate for improved services. Interested in contributing your time or supporting HNCSN? We offer a variety of ways to get involved:
- Organize a fundraising event in your community;
- Become a regional supporter, and lead support in your area.
- Donate. Your unrestricted gift is key to supporting our mission;
- Become a Corporate Partner of events and/or patient-focused or clinician education programs;
- Partner with us and host an education evening or screening in your community (only available to clinicians).
For more information on the Head and Neck Cancer Support Network, click here.
WELCOME NEW MEMBERS
Natalie Screen, Northland., Karin selman, Auckland., Angela Dillon-Jarvis, Hawkes Bay., Nicky MacDonald, Titirangi., G M Rigg, Wanganui., Rowan Jones, Auckland.
SAVE THE DATE
Auckland Support Group meeting
https://www.smilestore.co.nz/ for Neutrafluor $22.50.
Your Patient Experience Can Help Advance Research and Treatments
Did you know that your own experience as a cancer patient, and especially your opinions about treatments and side effects, can help shape the future of the patient experience for other head and neck cancer patients?
The 2018 Second Edition of the Australian Head and Neck Cancer Patient & Carers Book was launched in July 2018 at the ANZHNCS Conference in Melbourne. The book is a patient led initiative coordinated by former patient and Beyond Five Ambassador, Julie McCrossin, and fellow former patient Marty Doyle, coordinator of the Head and Neck Cancer Patient Support Group in Queensland.
The book shares many personal head and neck cancer stories from patients, family and carers from all over Australia and New Zealand. In addition, the book highlights some of the people who work in the head and neck multidisciplinary team who talk about important aspects of care at specific points in the head and neck cancer journey.
To order FREE hard copies of the 2018 Australian issue email: juliemccrossin@bigpond.
Eating Well with Head and Neck Cancer
The Cancer Support Community (CSC) has created a new Frankly Speaking About Cancer® (FSAC) booklet called Eating Well with Head and Neck Cancer, which includes tips on how to cope with common eating problems and provides easy-to-make recipes. This booklet can be downloaded or ordered, and used as a tool to help stay healthy before, during, and after treatment.
CSC presented a webinar of the same name in June, featuring Amanda Hollinger, Head and Neck Cancer Alliance; Jessica Iannotta MS, RD, CSO, CDN, Savor Health; and Dave & Thea Roff, Head and Neck Cancer Survivor and Caregiver. The webinar can be accessed online.
Frankly Speaking About Cancer® is the Cancer Support Community’s renowned resource for cancer education. FSAC provides innovative health education through print and digital publications, eLearning courses, online materials, webinars, in-person workshops, and a weekly radio show. To learn more about FSAC and the educational resources they provide, visit their webpage.
Melanoma, lymphoedema and "extra size" beyond the basics
This is a great seminar to help you understand lymphoedema. Get comfortable, make a cuppa and get ready to learn.
Support Starts Here
Living with head and neck cancer isn’t easy, but having access to information and resources will help guide you through your journey. Create your own cancer game plan today to get healthy recipes, helpful tips on things like managing your health, coping strategies, partnering with caregivers and more. It is a US plan, and there is plenty in it of value for New Zealanders. Click here to get started...
The Laryngectomee Guide, written by HNCA board member and throat cancer survivor, Dr. Itzhak Brook, is a very helpful resource for laryngectomees, their caregivers, and medical professionals. It contains information about the side effects of radiation and chemotherapy; methods of speaking; airway, stoma, and voice prosthesis care; eating and swallowing; medical, dental and psychological concerns; respiration; anesthesia; and travelling.
The Guide is available now in nine languages (English, Italian, Bulgarian, Turkish, Arabic, Chinese, Russian, Portuguese, and Persian (Farsi)).
Looking for answers or support?
The Cancer Society knows that going through cancer is tough and can raise many questions. They want you to know that they are here for you. From help with getting to your medical appointments or understanding your treatment options, to offering practical support, they can help.
The Cancer Society can help you find answers to questions about your treatment and its effects. There are pages of cancer information online and in booklets, and they are always available for emotional support when things get tough.
For answers, support or just a chat, call us free on 0800 CANCER (226 237) Monday to Friday, 8.30am–5pm.
Be sure to add our email address to your address book or safe senders list so our emails get to your inbox.