The 2018 Second Edition of the Australian Head and Neck Cancer Patient & Carers Book was launched in July 2018 at the ANZHNCS Conference in Melbourne. The book is a patient led initiative coordinated by former patient and Beyond Five Ambassador, Julie McCrossin, and fellow former patient Marty Doyle, coordinator of the Head and Neck Cancer Patient Support Group in Queensland.
The book shares many personal head and neck cancer stories from patients, family and carers from all over Australia and New Zealand. In addition, the book highlights some of the people who work in the head and neck multidisciplinary team who talk about important aspects of care at specific points in the head and neck cancer journey.
To order FREE hard copies of the 2018 Australian issue email: juliemccrossin@bigpond.
Did you request a treatment plan? Just ask #justask
You may not be aware that you can ask for your treatment plan options in writing. The New Zealand Patient Code of Rights sates in Right 6 (4) Every consumer has the right to receive, on request, a written summary of the information provided. Good decisions about treatment are a result of good information provided to the patient and their caregivers, family/whanau. So it is useful to have something to take away from a clinical consultation and share with your support team.
The ASCO Value in Cancer Care Task Force suggests patients need an understanding of the possible clinical benefits and harms of treatment options available to them. For some this will include the financial aspects of their decision making. Some patients may choose private treatment, and are willing or able to bear those costs. So if you are facing treatment, remember just ask for a written summary.
Didn't receive a survivorship plan following treatment?
Well, there is now the technology to create your own. I highly recommend completing the ONCOLIFE survey. At the end of it you will receive a survivorship plan tailored to your particular situation. You can use that plan to manage your own care, and converse with your health professionals. It is a wonderful tool.
If you want to know some more about the research behind patient driven survivorship plans you can read this article or simply enjoy this little bit of it. prom-153919-patient-reported-outcomes-in-head-and-neck-cancer-prospecti-072618.pdf
For head and neck cancer in particular, the incorporation of Patient Reported Outcomes (PROs)has been appreciated by physicians to enhance their assessment of late symptoms. However, knowledge is only one aspect of survivorship, as an actionable plan to maximize posttreatment quality of life and function is the end goal. On the surface Survivorship Care Plans (SCPs)appear a natural offshoot of normal postoncological treatment follow-up. There are many resources available such as the National Comprehensive Cancer Network clinical practice guidelines that provide advice on posttreatment management such as disease surveillance intervals and screening modalities;1 however, such guidelines do not emphasize toxicity management or psychosocial aspects of survivorship. This is where incorporation of PROs into SCPs can lead to follow-up plans tailored to the survivor.
LIVESTRONG Care Plan Click the link here to create your own care plan.https://oncolife.oncolink.org/form/oncolife_v11/
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Dr. Katzel on Why Women With Head and Neck Cancer are Undertreated
Some answers on why women with HNC receive less treatment than men.…