NEWS

Network News Monday 13 May 2019

Kia ora tatou,

Network News

The Network has a new Board for the 2019/20 year. Diana Ayling (Chair), Heather Anderson (Secretary), and Board Members, Monica Koia, Brian Sheppard, and Gaynor Anderson. We elected to change the name of the “Committee” to “Board” and to allow online voting for any meeting of members. You can access the Minutes of the AGM here.

The Board is committed to two projects in the year ahead. We will be focusing on bringing the head and neck cancer community in New Zealand to have “One Voice” and to “Build our Community” by connecting people to the Network and with each other.

There are new developments with our website, the creation of a new form of Facebook group, and the continuing development of face to face support through support groups. We will keep you up to date through our Network News.

Members  Support

Last year 66 people joined the Head and Neck Cancer Support Network website. The Network community of 214 people all with shared interest in head and neck cancer. However, this is a small number of people affected by head and neck cancer in New Zealand, and we are striving to grow the community this year. Please encourage people you meet to sign up and join us. Family and friends are most welcome. 

Welcome to new members. Monica Ngaire Koia (Board Member)Adrianna PetermanPhilip HopeLana AndersonCarlos, and Jenn Lourie.

Website Support

Our website continues to serve people affected by head and neck cancer. The website had 34,000 hits in the last year. We are working to refresh the site, and to ensure it is usable and relevant. If you would like to make suggestions on the redevelopment you can do so here….

National Connections

 

The last week was very busy for many cancer organisations, as Patient Voice Aotearoa asked New Zealanders to sign petitions to Parliament asking for funding of life saving medicines. As an active member of Patient Voice Aotearoa we will continue to support this campaign.

http://headandneck.org.nz/news/right-to-live-join-hands-change-lives

http://headandneck.org.nz/news/access-to-life-saving-medicines-the-story-so-far

 

 

 

Regional Connections

We are pleased to be working with the Auckland Health Foundation to refurbish the whanau room in Ward 74 of Auckland City Hospital. The hospital is a hub for patients from the greater Auckland and Northland area. We want carers, family/whanau and friends to feel comfortable while supporting those affected by head and neck cancer. If you can donate please do...make sure you follow the link to Ward 74. https://aucklandhealthfoundation.org.nz/get-involved/help-us-refurbish-ward-74s-whanau-room/?fbclid=IwAR1sgWzra9JH6zQMcEInktOecT8xp3K3Q2y7GN-RYtlcltlOnQbu746Wq44


International Connections

For World Head and Neck Cancer Day 2019 we are joining with Australia’s Beyond Five to raise funds for the New zealand’s Head and Neck Cancer Support Network through Soup for the Soul. If you would like to host an event please register here and we will send you the support pack. https://forms.gle/TDNuYQkHwiJx84xL7

Online Support (Apps, websites, resources)

Live Better With 

A highly recommended set of resources

Live Better With Cancer makes everyday living a little bit better for the millions of people living with cancer all over the world.

Together with patients, their families, nurses, doctors and experts, they have handpicked 1000's products and written over 250 practical articles, guides and even a podcast to help ease symptoms and side effects, and improve the quality of day-to-day life.

They have built a thriving online community of over 70,000 people talking about cancer and supporting each other. Talking to and hearing from the community is helping build Live Better With into the most useful practical destination for people living with cancer - all of products and information are guided by community recommendations.

Uniquely, Live Better group all the products by how someone might be feeling (e.g., 'Feeling sick' or having 'Difficulty Sleeping'), so it’s very easy to discover all the relevant and helpful things that have worked for others with the same need as you.

https://cancer.livebetterwith.com/blogs/cancer/tagged/category_expert-guides

Save The Date!

10 June 2019 Auckland Support Group meeting. Domain Lodge, Grafton at 11am. Speaker Jacqui Allen - Voice and Swallowing expert.

Looking for answers or support?

The Cancer Society knows that going through cancer is tough and can raise many questions. They want you to know that they are here for you. From help with getting to your medical appointments or understanding your treatment options, to offering practical support, they can help.

The Cancer Society can help you find answers to questions about your treatment and its effects. There are pages of cancer information online and in booklets, and they are always available for emotional support when things get tough.

For answers, support or just a chat, call us free on 0800 CANCER (226 237) Monday to Friday, 8.30am–5pm.

Thank You to our Corporate and Community Partners

International Groups

Online Support Community - Head and Neck Cancer Alliance

SPOHNC | Support For People with Oral, Head and Neck Cancer

HNC Support International: Head and Neck Cancer Support

Head and Neck Cancer | Cancer Support Community

Throat Cancer Support and Resources - Throat Cancer Foundation

Head and Neck Cancer Alliance Support Group & Community - Inspire

The Oral Cancer Support Forum

Head and Neck Cancer Survivors

Be sure to add our email address to your address book or safe senders list so our emails get to your inbox.

E-mail me when people leave their comments –

Diana Ayling

You need to be a member of Head & Neck Cancer Support Network to add comments!

Join Head & Neck Cancer Support Network

Happy with your treatment experience?

Please share your thoughts on your recent treatment experience. This can be at any stage of your cancer journey, pre treatment, treatment, post treatment, and survivorship. 

You can take our survey as many times as you like, and we encourage you to have your family/whanau and carers share their thoughts as well. Click the link to share your thoughts.

https://www.surveymonkey.com/r/PatientNZ

 

 

Donations are always welcome

Donate via Givealittle

Or, you can put a little bit of money in our Kiwibank account!

38-9017-0819902-00

Upcoming Events

Cancer Dictionary