Kia ora tatou,
Head and Neck Cancer Community Concerns
In an Open Letter our Chair, Diana Ayling, addresses community concerns that have arisen over the last year. As the New Zealand health system faces significant pressures, it is important we as a community work collaboratively together, with one voice. Putting the past behind us is part of that process. Click here to read more....
Annual Members Survey Results
The Network carries out a Members Survey each year. We recently completed the Survey and I wanted to share the results with you.
We gathered some valuable data which helps us understand how we are tracking and how our people are feeling. We are pleased to see positive trends across all areas measured, which is heartening.
Some of you provided some comments. We hope we addressed these issues in our Annual Report. we strongly encourage everyone to read this document, and hope it answers any questions or concerns people might have. Click here to read the report. http://headandneck.org.nz/agm
We have appreciated your participation and willingness to provide feedback. We had some great comments that will inform our work over the next year.
Our Net Promoter score was 0, (50/50 negative and postive) which means we need to do a lot more work to ensure members would recommend the Network to others. To see our results click here.
We have created a new category of member for the Network website - Friends of the Network. We know there are family, and friends of patients who want to support the Network, but do not feel they can as a "patient" classification. With the new category of member we hope you will feel you can share the community and website with others. When members sign up, they will choose their category and receive their own unique communications.
If you want to update your profile, add a photo, or change your category you can do so by logging in to the website, and clicking the tab MYPAGE.
We are working on rebranding the Network, and redeveloping the website. If you would like to make suggestions on the redevelopment you can do so here….
Heather Anderson and Diana Ayling met with representatives of the Australian and New Zealand Head and Neck Cancer Society in Wellington. The meeting was productive and we have agreed to work on a number of projects together.
In the photo from left to right, Ross Martin, Heather Anderson, Diana Ayling, Kevin McDonnell and Dr Swee Tan.
Patient Voice Aotearoa
Patient Voice Aotearoa (PVA) is a national collective of disease and illness advocacy organisations, as well as individuals throughout New Zealand. The primary function of PVA is to advocate for the rights of New Zealand patients. Already the response has been overwhelming and we are nearing 2000 members since we began establishing branches on Thursday afternoon this week. There are some great ideas being floated between members, as well as some positive and constructive dialogue.
Patient Voice Aotearoa will present a new round of petitions to Parliament in the near future. There are two drugs currently approved by MedSafe but not currently funded by Pharmac, which may be of benefit to people affected by head and neck cancer.
If you are interested in supporting this campaign, please contact us for more information. firstname.lastname@example.org
Bay of Plenty: https://www.facebook.com/groups/298886947658801/
East Coast: https://www.facebook.com/groups/299994910889938/
Hawke’s Bay: https://www.facebook.com/groups/609185609567883/
Palmerston North: https://www.facebook.com/groups/2336987913250472/
West Coast: https://www.facebook.com/groups/918405465218335/
We are pleased to be working with the Auckland Health Foundation to refurbish the whanau room in Ward 74 of Auckland City Hospital. The hospital is a hub for patients from the greater Auckland and Northland area. We want carers, family/whanau and friends to feel comfortable while supporting those affected by head and neck cancer. If you can donate please do...make sure you follow the link to Ward 74. https://aucklandhealthfoundation.org.nz/get-involved/help-us-refurbish-ward-74s-whanau-room/?fbclid=IwAR1sgWzra9JH6zQMcEInktOecT8xp3K3Q2y7GN-RYtlcltlOnQbu746Wq44
Cancer Society - Wellington, Nelson, Wairarapa, Kāpiti, and Wellington
Many thanks to Margaret Alve, and her team for their hospitality on our recent visit to the Wellington base of the Cancer Society. There is a Head and Neck Support Group for folks in the area. They meet on the first Sunday of the month 2:30pm Ground Up Cafe, Pauahatanui. Contact Cheryl at email@example.com for more details.
The Latest Head and Neck Cancer News from Around the World
This week we have news from New Zealand research into head and neck cancer, a brave survivor speaks about the signs and symptoms of head and neck cancer, and we introduce you to a life saving technology - the Gamma Knife. Enjoy...
For World Head and Neck Cancer Day 2019 we are joining with Australia’s Beyond Five to raise funds for the New zealand’s Head and Neck Cancer Support Network through Soup for the Soul. If you would like to host an event please register here and we will send you the support pack. https://forms.gle/TDNuYQkHwiJx84xL7
Online Support (Apps, websites, resources)
Canopy TV – an online news channel for the cancer community.
Canopy TV is a New Zealand based organisation that aims to provide interesting and topical information to cancer patients and their families, increase people’s understanding of cancer and showcase interesting clinical developments in cancer treatment. https://www.canopycancercare.co.nz/canopytv
Save The Date!
10 June 2019 Auckland Support Group meeting. Domain Lodge, Grafton at 11am. Speaker Jacqui Allen - Voice and Swallowing expert.
Looking for answers or support?
The Cancer Society knows that going through cancer is tough and can raise many questions. They want you to know that they are here for you. From help with getting to your medical appointments or understanding your treatment options, to offering practical support, they can help.
The Cancer Society can help you find answers to questions about your treatment and its effects. There are pages of cancer information online and in booklets, and they are always available for emotional support when things get tough.
For answers, support or just a chat, call us free on 0800 CANCER (226 237) Monday to Friday, 8.30am–5pm.
Thank You to our Corporate and Community Partners
Be sure to add our email address to your address book or safe senders list so our emails get to your inbox.