Kia ora whanau,
6 February is a very special day for New Zealanders. All over the world we are celebrating the signing of the Treaty of Waitangi (te tiriti O Waitangi) in the Bay of Islands on 6 February 1840. It is from across the bay, from the treaty grounds I write this Network News. There is much excitment in the air as we prepare for a day of celebrations, song, dance, and plenty of food! So Kiwis, get out there, and enjoy the day.
Our Network - update
Over the last few weeks we have had a number of inquiries from patients and patients+ (carers, family/whanau) about entitlements to treatment, care and support. A number of folk are finding navigating the patient pathway difficult, especially if they have both private and public care.
Your treatment entitlements are found in the National Tumour Standards. The Head and Neck Standards can be found on the right of the page. You can download and print them. The standards are in draft form and they date from 2013. However, they provide a baseline from which patients should receive treatement, care and support.
If you are not happy about your treatment, we advise you seek assistance from the Health and Disability Advocates. http://advocacy.hdc.org.nz/ The service is free to New Zealanders. The advocates can help you to navigate any problems you may encounter. We also recommend you take advantage of the services of your local Cancer Society. They have liason nurses, and psychologists, again, they are available at no cost.
Every patient diaganosed with head and neck cancer will be referred to a Head and Neck Multi Disciplinary Team. This team is ultimately responsible for the patient's treatment, and reconstruction pathway. Your Cancer Care Coordinator nurse will be a member of the team and able to assist you. Where there is not Cancer Care Coordinator Nurse in place, you Nurse Specialists will be available to assist you. You always have your GP to help you navigate the system. Don't be afraid to ask them to help you.
You are all invited to our February meeting. 5 February 11.30 -1.30pm Domain Lodge, Grafton, Auckland. The speaker is Dr Eric Levi. Eric is a surgeon and blogger visiting New Zealand on a fellowship. You can check him out here https://ericlevi.com/
Our Network continues to grow. We are New Zealand focused, and welcome new folk from around the world. We are all connected by our head and neck cancer experiences. We are delighted to have 758 Twitter followers, 293 people in our Facebook group, 140 website members, and 478 LinkedIn contacts. If you want to connect with us through any of these channels you can do so here. Our website, http://headandneck.org.nz/, Facebook Group, Twitter, https://twitter.com/HeadNeckNZ, LinkedIn, https://www.linkedin.com/in/headnecknz/
We welcome to our Network these new members.
John Antony Scott, Worcester. UK., Gloria Rigg, Wanganui.
Some of the new folk, will be in your area. As you know, you can click on the names to send a message to each of these people, and welcome them to our Network. Don't forget our Groups. We have something for everyone, and you can add a comment in the Forum to make contact with the members of your group.
Popular Posts - these posts are the most read over the last two weeks on our website.
Working on it! Now have most speakers set in place and Tuesdays evening meetings shaping up. Have invited speakers for them.
This is a new move for @HeadNeckNZ. An attempt to allow people who work during the day to attend our meetings.
We will do our best to keep to this programme and yet keep one or two slots open for any ideas that you have. …
The Cancer Society reviews its resources every few years. Here is the booklet on living with a dry mouth. It is geared at anybody with dry mouth not just post-radiotherapy people. On pages 18 and 19 it gives a list of products out there to help us. What do you think? Have you tried these products? (An…Read more…
Here is our first regular Wednesday Weekly of the year curated by one of our members.
A cancer diagnosis has long since stopped being a death notice, but the treatment is rarely gentle and can be a traumatic challenge. The first story emphasises the need to keep focused on the…Read more…Have a very happy Waitangi celebration!
Ka kite ano,
Chair Head and Neck Cancer Survivors' Support Network