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Wednesday Weekly - 17 November 2016

Keytruda/nivolumab continues to gain attention as the latest great hope in cancer treatment with studies and reports from the U.K., U.S. and elsewhere. However most of those reports do admittedly seem to talk about improved survival rates in terms of months rather than complete cures. On the brighter side the globally recognised increase in H & N cancers has sparked an upsurge in research projects and new developments are reported regularly.
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Official Health Consumer Tweeter needs help

From: Melissa Cadzow <>
Date: 8 November 2016 at 3:53:00 PM NZDT
To: Undisclosed recipients:;
Subject: I NEED YOUR HELP: I have 2 new strange titles for the week starting November 14...“official health consumer tweeter” for #MayoInOz and the “citizen journalist” for @WePublicHealth

Hello friends,

I’m writing to the awesome people in my life interested in consumer centred care.


Melissa is excited that for the week starting November 14th she gets to do really co

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Friendly Friday - 11 November 2016

Its Friendly Friday and a good chance to introduce ourselves. Our Network has 30 members. 29 are real people and 1 is "Tui Bird" the Network login. "Tui Bird" is manned (wommanned) by Maureen and Diana. We have 10 men and 20 women, counting Tui Bird. We have 14 Aucklanders, 2 Northlanders, 6 South Islanders, and 5 other North Islanders. We have 3 Aussies. (Kia ora mates!). We have 6 Groups for the Cancer Regions of New Zealand. You are welcome to join one and share information and support with o
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Weekly Wednesday - 10 November 2016

Medical professionals are more and more confronted by patients convinced they are suffering from some malady they have researched on the Internet – or demanding a treatment they discovered the same way. While researching a specific ailment is usually beneficial, the professionals almost invariably have better, more thorough and tested sources of information. But ask them questions if your own research throws up an anomaly or idea you think worth pursuing.
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Friendly Friday: Join Us

Here we are, one week after the website going online. You can join us by signing on. See the top right hand corner. While the public can see our news and resources, only members can see our forums and other good stuff. Members can comment in the forums or under our articles. 

Our previous website, really only a blog on, now redirects to this site. We were getting over 4000 hits a month over there so we expect this site to grow gradually. People will find our articles and some of the

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Hello to all our new members. Every Friday we will try to provide news to give us a lift. 

Beyond Five is a new head and neck cancer support organisation in Australia. They aim to support people like us beyond the five years (and I'm sure before five years) as we struggle with the side effects. Here is a quote from their site.

"Why the name?

When doctors talk about curing cancer they talk in terms of 5-year survival. However, in patients with head and neck cancer the effects of the cancer and

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New website launched today....

2146735?profile=RESIZE_1024x1024Welcome to our new website. The Network has been working on this for quite a while, and we are proud to bring you a comprehensive community for head and neck cancer people. We look forward to hearing from you in the comments section below.

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Cancer Dictionary