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Kia ora tatou,

Network News

Head and Neck Cancer Community Concerns

In an Open Letter our Chair, Diana Ayling, addresses community concerns that have arisen over the last year. As the New Zealand health system faces significant pressures, it is important we as a community work collaboratively together, with one voice. Putting the past behind us is part of that process. Click here to read more....

Annual Members Survey Results

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The Network carries out a Members Survey each year. We recently compl

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Response to Community Concerns

 

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Kia ora tatou,

This is me, and my friend Hazel. In 2011 we were on the Derwent river, Hobart, Australia. We were on our way to see MONA, the Museum of Old and New Art. We had just presented our paper at the ASCILITE conference, Thinking, researching and living in virtual professional development community of practice.

We were thrilled that our paper was well received.  We were further delighted, when a respected Italian academic invited to write a book chapter in her upcoming book.  In 2013,

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This week we have news from New Zealand research into head and neck cancer, a brave survivor speaks about the signs and symptoms of head and neck cancer, and we introduce you to a life saving technology - the Gamma Knife. Enjoy... 

Medicine already in use may help cancer treatments

This story was originally published on Newsroom.co.nz and is republished with permission.

From the Bay of Islands to Brussels there's a call to take a fresh look at old drugs to see if they could treat cancer for a fr

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Head and neck cancer news is very quiet this week. We bring you three stories to keep you thinking....

The 3 Essential Strategies To Come Back To Life After Cancer

The reality of life after cancer can be one of overwhelm and anger, of feeling lost and alone with no idea how to pick yourself back up and live the life you survived for.
 

Half Of Cancer Patients Struggle To Seek Help Because T

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Kia ora tatou,

Network News

The Network has a new Board for the 2019/20 year. Diana Ayling (Chair), Heather Anderson (Secretary), and Board Members, Monica Koia, Brian Sheppard, and Gaynor Anderson. We elected to change the name of the “Committee” to “Board” and to allow online voting for any meeting of members. You can access the Minutes of the AGM here.

The Board is committed to two projects in the year ahead. We will be focusing on bringing the head and neck cancer community in New Zealand to

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This week our Weekly Wednesday includes one man's struggles with the DHB system, new research indicates that HBO has limited benefits, researchers at MD Anderson Cancer Centre find some persistent aspects to HPV following treament and Lynn Aspey, explores "the new normal". Enjoy!

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Reasons for a hospital pass

... to larger tertiary boards like Waikato or Auckland, and some covered by board ... Specialists employed or directly contracted by Taranaki DHB include ... "This is business as u
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Friday was an easier start as we knew the format and layout ….. old hands we greeted each other like long lost family – we are united now. in this together …. Mostly health professionals but some big absences noted.
 
The first session was Rami Rahal from CPAC (Canadian Partnership Against Cancer, Canada). He spoke on improving outcomes through evidence-based policy and performance measurements. – OMG – fantastic work. He admits that currently we do better in involving our indigenous people
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Below are seven petitions that are being presented to Parliament next Tuesday (7 May) for 26 life extending or life improving drugs to be funded by PHARMAC, across six diseases (Lung Cancer, Breast Cancer, Ovarian Cancer, Chronic Lymphocytic Leukaemia, Multiple Myeloma and Pompe Disease).  Some of these drugs have been funded for many countries for many years.  Some of the petitions close within three days.  
 
Please take the time to sign each one (they only take twenty seconds e
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 Only one immunotherapy drug is approved and funded for people affected by head and neck cancer. Two drugs have been approved by MedSafe and are waiting for funding from Pharmac. The development of immunotherapy treatments will explode in the next ten years. We want people affected by all forms of cancer to have the best possible treatment, care and support. Read on...
 
  1. May 3 

    Hundreds march on Parliament demanding government ... - Stuff.co.nz

    https://www.stuff.co.nz/.../petitioners-march-on-p

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This week our Network News covers a great new podcast from our friends in Australia, new developments in immunotherapy, Ellen Goodman gives you the maths on starting the conversation about End of Life Care, and finally some data on the rise of head and neck cancers. 

The Thing About Cancer

2226295780?profile=RESIZE_710xListen to the welcome episode to find out what The Thing About Cancer podcast series is all about – and how it can help after a cancer diagnosis.

Get information and insights as host Julie McCrossin chats to e

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This week our Network News is all about our Network. The AGM is to be held Monday 6 May at 6pm at Domain Lodge, Grafton, Auckland. Please check the details on our website. Patients, friends and family are most welcome to attend. It is an opportunity for members and prospective members to get together to discuss the performance of the Network over the year, and to plan for the year ahead. 

What is you cannot attend in person?

You can attend our meeting by accessing it through Zoom technology onl

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Quote from the article link shown below:

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For example, Bell describes a study published by Southwick and colleagues in BMJ Quality & Safetyin which they analyzed patient reports following medical

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This week we share with you some commonly head myths about Head and Neck Cancers, a touching story of a rugby player determined to make the best of his end of days, and we look at why there are so few women as surgeons. 

Commonly Held Myths of Head and Neck Cancers

1989703960?profile=RESIZE_180x180There are many myths associated with head and neck cancer such as how environmental influences can affect our risk, or what role gender plays. Here, Dr Fauzia Riaz helps set the record straight to provide the real facts behind the myt

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From our representative Heather Anderson.

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The Thursday afternoon sessions started with Prof David Currow (Cancer Institute NSW, Australia) talking about prioritisation experiences in cancer control in Australia – in particular hubs of excellence. See his presentation here.

Hon Steve Maharey, the new Chair of PHARMAC, talked on the processes of PHARMAC – my personal take was that he used his “newness” to avoid the hard questions.  There was an item of interest that he talked on which was a new d

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Imaging Tool Helps Doctors Predict How Cancer Will Respond to Radiation

Clinicians who prescribe radiation to treat cancer face a fundamental difficulty in determining what dose to apply: They don’t know how individual tumors will respond to the therapy.

Now, a project by researchers at the University of Arkansas and Johns Hopkins University may promise a way to detect the difference between tumors in the lung and the head and neck that react positively to the therapy, by shrinking, and those

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Kia ora tatou,

Stand with our brothers and sisters affected by lung cancer. More New Zealand die of lung cancer than any other cancer. Sufferers are often stigmatised by smoking, when most have never smoked. The Lung Cancer Foundation are looking for support for their petition to have lung cancer declared a health priorty and to approve additional budget for Pharmac to fund lung cancer medications, including Keytruda, Alectinib, Osimertinib and Crizotinib, for all Kiwis with advanced lung cancer

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Health and Disability Survey

We are intending to make a submission on the current state of the New Zealand health and disability system. We will collate all your responses and present them to the Review. Submissions from organisations are powerful. We intend to advocate for the best treatment, care and support for people affected by head and neck cancer. If you wish to share your thoughts you can do so by accessing our survey here. https://www.surveymonkey.com/r/GZZY9F8

The Government is currently asking for feedback on the

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How to Cope With Post-Cancer Fear

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Credit: Photo compliments of Robert Brown Robert Brown, a retired attorney, leans on a sign post at Chamonix-Mont-Blanc, a resort area in the Alps near the junction of France, Switzerland and Italy. Brown has survived throat and bladder cancer and continues to live an active life that includes golf, backpacking and yoga.

You get cancer. You get it fixed. After treatment ends, you get something new: a black cloud that can follow you around for decades. Is this n

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Cancer Care at a Crossroads 2019 (2)

 

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Professor Skegg

Heather Anderson continues her summary of attending the Cancer Care at the Crossroads conference. 

For me the Conference started on Wednesday afternoon. The pre-Conference lecture was from Dr Fatima Cardoso.  She is a world reknown oncologist with an interest in Advanced Breast Cancer (ABC) from Lisbon. She and others have been instrumental in setting up ESMO. This is a 10 step guidelines program to improve outcomes for those with ABC.  Dr Cardoso travels the world helping cou

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