All Posts (401)


If you think it is not working for you. It turns out, you are not the only one. 

Here's the problem. If you have an injury due to accident, (including a treatment injury) you are covered by ACC. If you are working at the time, you will be entitled to weekly compensation payments at 80% of your earnings. However, if you have an injury caused by disease, or infection you are dependent on the social welfare system. Not everyone, including people who work, will qualify. There is a significant disad

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The Unspoken Problem with Head and Neck Cancer.

137045536?profile=RESIZE_710xAlthough few statistics are available to assess how patients with cancer are affected by prescription opioid use, a recent study found that 70% of patients with cancer use opiates after radiation, according to a poster presented at the ASCO 2018 Palliative and Supportive Care in Oncology Symposium.

Moreover, the researchers found higher rates of use among patients who received chemotherapy, actively smoked, used alcohol, or were diagnosed with head

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Network News - 26 November 2018

Kia ora tatou, 

this week our Network News shares changes to meetings of the Auckland Support Group, our Connect 500 project continues, we profile Eva McGauley, an inspirational head and necker who sadly passed away last week. There are lots of new support resources, and news. Read on...

Network News

Auckland Support Group Meetings 2019

Here at the Network we seek to respond to head and neckers needs. One thing that has become apparent in Auckland is the need for a support group to meet outside

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Guideline recommending removal of half the thyroid gland benefits thyroid cancer patients

BOSTON: Thyroid cancer is the most rapidly increasing cancer in the United States, with around 63,000 new cases diagnosed annually and more than 600,000 Americans living with a previous diagnosis, the American Cancer Society reports.* Traditionally, the vast majority of these patients undergo complete removal of the thyroid gland--known as a total thyroidectomy--to treat their cancer rather than the le

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Network News 12 November 2018

Kia ora tatou, 

This week our Network News is chocker full. We have a new activity where we asked you to connect with five new people on the website. We have some new support resources, the opportunity for you to take part in an international survivorship survey, and some information on the vexed problem of "informed consent". Finally, you get to know our Chair, Diana Ayling as she takes on the 31 question Challenge! Happy reading...

Network News

Be Part of the Network 500

134022637?profile=RESIZE_710xWe have 186 members, a

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International Cancer Survivorship Survey

NCCS Survivorship Survey

From the USA National Coalition for Cancer Survivorship

The purpose of this survey is to better understand the needs and experiences of cancer patients. This survey is being conducted by Edge Research on behalf of the National Coalition for Cancer Survivorship (NCCS). Many of the questions will be about your experiences during and after cancer treatment, and your feedback will help inform NCCS’ services and outreach. This survey is

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Your Chair - Diana Ayling

Over the next few months we are profiling our committee, so that you know them a little better.  

The first cab of the rank is our Chair, Diana Ayling.



  1. What are you reading currently?
    The Open Organisation by Jim Whitehurst of the Red Hat organisation. It is all about working in an open and transparent business and the edge it gives business in innovation and performance. Love it!

  2. What’s the first concert you attended?
    Easy, Elton John, 28 February 1974 at Western Springs. He came out dress
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Carer, caregiver, support person … when someone you love has head and neck cancer, it affects you too.

Research has shown that looking after the carer improves the outcome for the patient. Some patients say it is harder to be the onlooker than to be the one suffering the disease.

Interestingly, the famous Swallows book is for "Patients, carers and family members". You can’t live in a house with someone who is getting over rigorous treatments or coping with a peg or laryngectomy stoma without

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HPV blood test shows promise for tracking head and neck cancer after treatment

CHAPEL HILL - A new blood test developed by University of North Carolina Lineberger Comprehensive Cancer Center researchers shows promise for tracking HPV-linked head and neck cancer patients to ensure they remain cancer-free after treatment.

Researchers will present preliminary findings at the 60th Annual Meeting of the American Society for Radiation Oncology in San Antonio on Tuesday, Oct. 23. Their study evalua

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Marketing of sugar, alcohol & tobacco:

Government action is needed to regulate the "extremely dangerous" marketing of junk food, alcohol and tobacco — the "holy trinity of public health".

That's the call from marketing expert Professor Gerard Hastings, speaking at the Cancer Society Auckland Northland's symposium for Cancer Research Week on Monday. 

Around 8000 New Zealanders are diagnosed with potentially preventable cancer each year caused by these "big three" risk factors, the Cancer So

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131059926?profile=RESIZE_710xMental Illness has many cloaks – one cloak does not fit all.  It looks and feels different for each person.

Each year I go through a slump – Mid August to Mid October – give or take a day here or there. All tied up with loss, a loss that continues to haunt me 40+ years later!

Am I "clinically" depressed – not according to doctors.   

Am I functioning – some would say not as well as usual but I still hold down a job and I still manage to feed myself and my cats.  I function and therefore I am!   

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Network News 29 October 2018

Kia ora,

A Sensitive and Real Issue Resolved!
Thank you to those who provided comments on our sensitive issue. We have changed our joining process to include a question regarding your wishes. This will be available to all who join the Network. If you wish to update your profile and express your wishes, go to MY PAGE and OPTIONS (right side of the page) EDIT PROFILE. 

Support - what does it mean to you? 

131059938?profile=RESIZE_710xIn this post by one of our members "support" the value and nature of support is considered.

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Knowledge Gaps on HPV's Link to Head/Neck Ca for Docs in Training

Few are equipped to perform HPV vaccine counseling, study found 


ATLANTA -- Medical students and resident trainees are largely unaware of the association between human papilloma virus (HPV) and oropharyngeal squamous cell carcinoma, according to researchers.

In a survey returned by more than 1,900 medical students and 1,000 residents, recognition of the link between HPV and cervical cancer was nearly universal, but only abo

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Happy with your treatment experience?

Please share your thoughts on your recent treatment experience. This can be at any stage of your cancer journey, pre treatment, treatment, post treatment, and survivorship. 

You can take our survey as many times as you like, and we encourage you to have your family/whanau and carers share their thoughts as well. Click the link to share your thoughts.



Cancer Dictionary