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Kia ora,
Melbourne may be in locked down but the desire to help head and neckers remains strong.
Tracheostomy Patients, families, carers and clinicians please plan to attend
Tracheostomy Patient and Family Forum 2020
Hosted by Austin Health, Melbourne in partnership with
The Global Tracheostomy Collaborative (GTC)
A Symphony of Stories
with Inspiring Guest Speakers;
Benjamin Northey, Chief Conductor in Residence,
Melbourne Symphony Orchestra
and Chief Conductor, Christchurch Symphony O
Click this version to print.
Improved cancer care for Kiwis
SunLive
This week they have released their updated New Zealand Cancer Action Plan, David saying it better reflects the voices of people whose lives are ...
Surveillance of ctDNA in HPV-Positive Head and Neck Cancers May Predict Recurrence
Targeted Oncology
The detection of circulating tumor DNA (ctDNA) in human papillomavirus (HPV) with an experimental blood test has been associated with high positive ...
The petition was launched in the later part of 2019 by Diana Ayling. The petition acheived over 640 signatures, and was presented to David Seymore, Member of Parliament for Epsom in November 2019. The petition was tabled in Parliament on the same day. The petition was referred to the Health Select Committee. The Committee are seeking a written submission before speaking with Diana Ayling at Parliament.
The Committee is meeting 12 February 2020 and will review the Network's written submission. Th
Potential for new political party as lobby group pushes to increase Pharmac funding
Patient Voice Aotearoa chairman Malcolm Mulholland said the concept of new political entity campaigning for better drug buying policies is gathering support.
Mr Mulholland, whose wife Wiki has terminal cancer, is calling for the doubling of funding to Pharmac.
He said patients with a raft of health issues, ranging from cancer to mental health, are being forced to "beg for their lives" when it comes to acc
Five Steps to a New Normal: Life After Cancer
This article was written by Jenny Leyh, a mother, freelance writer, cancer survivor and integrative health advocate living in Haddon Heights, New Jersey.
Hearing the words “you have cancer” was devastating. It was a life-altering diagnosis that caused time to stand still. But once a plan was established and the treatment began, the fear and unknowns morphed into empowerment. My medical team kept a close eye over everything I did and it was comforting
EU approval for Keytruda in head and neck cancer
The European Commission has approved MSD’s Keytruda (pembrolizumab) as monotherapy or as part of a combination, for the first-line treatment of patients with metastatic or unresectable recurrent head and neck squamous cell carcinoma (HNSCC).
The regulatory body says that the approval was based on data from the Phase III KEYNOTE-048 trial, in which the drug, compared with standard treatment (cetuximab with carboplatin or cisplatin plus 5-FU), demo
The Patient Voice Aotearoa chairperson says better medication funding is desperately needed
Eight petitions with 48 thousand signatures were presented to parliament - pleading for money for drugs and devices.
Malcolm Mulholland says the organisation has now decided to lodge their own petition.
He says they are calling on the Government to immediately double the PHARMAC budget with plans to triple it in the future, as well as reform the agency. Read more....
Malcolm Mulholland says the organisation has now decided to lodge their own petition.
He says they are calling on the Government to immediately double the PHARMAC budget with plans to triple it in the future, as well as reform the agency. Read more....
Petitions Presented: A United Stand
Deputy Prime Minister Admits Pharmac Needs More Money
Patient Voice Aotearoa welcomes the comments made by the Deputy Prime Minister Winston Peters on ‘The Project’ on Friday last week. Peters stated “Right now…we know we are not spending nearly enough on pharmaceuticals and first world drugs…the reality is that Pharmac’s budget is not big enough and we have to face that as a country and make some accommodations to give people the treatment and first world drugs that they deserve. We have a $7.5
Happy with your treatment experience?
Please share your thoughts on your recent treatment experience. This can be at any stage of your cancer journey, pre treatment, treatment, post treatment, and survivorship.
You can take our survey as many times as you like, and we encourage you to have your family/whanau and carers share their thoughts as well. Click the link to share your thoughts.
https://www.surveymonkey.com/r/PatientNZ
