I’m in favour of patient attendance at the multidisciplinary meeting. The first time I attended one in October 2009, I felt quite humbled by the experience and got a secret thrill out of being the centre of attention. Wow, so many medical people looking at me and wanting to make me better.
Last time, though, in 2014, it was a more daunting experience. I had a recurrence and the meeting room seemed to have been turned into a theatre with me alone on the stage. I still think it was of…
Is it nature or nurture that determines our fate? Is it our genes that make us who we are or our environment? According to some of the speakers at this symposium, we are not fully responsible for many of our behaviours. Our bodies and minds are affected by genes, hormones and bugs. Nature is what makes…
The Auckland Review Group is looking for a person to represent patients in a newly formed governance group.
Please see the attached Position Description for more details. …
The holiday season is fast approaching , as retailers and shopping malls are eager to point out, and it can be tempting to let stress build up at this time of year.…
We know that the Gardasil vaccine has cut the numbers of cervical cancer dramatically but what about the vaccine uptake for boys to prevent throat and other HPV related cancers?
A local paper shows the stats. To me, this is alarming news. …
It is quite amazing what many of us go through to reach a "new normal". This is a well written story from the UK cancer support organisation, Macmillan.
Remember the Dave…
We can count on Geoffrey Reid of Plymouth in the UK for an interesting monthly newsletter for HNC people.
It’s an unfortunate truth that the cancer battle doesn’t end after treatment - even successful treatment. The effects , physical and mental, will linger and dealing them is not always easy. Lead article this week gives a few possibly useful, tips on coping.
A smart device for the hearing impaired. An iPhone or iPad can connect directly to a cochlear implant, Good news for the increased number of people who will be getting cochlear implants after the additional funding announced in the build-up to the election.…
Kia ora whanau,
EPatient Dave Visit
It was a great honour to meet Dave de Bronkhart. Dave was a guest of the Waitemata DHB. He spoke to WDHB as part of the CEO lecture series. He kindly shared his time with a smaller workshop which some of us from the Network attended.
Dave's story is moving and fascinating, as his cancer treatment was recommended not by his health care professionals, but through a online patient discussion board. Dave's treatment…
Spring is almost over but it's still here all around us with blossom, buds, new leaves, flowers and tiny fruit. Mild days, longer nights and sometimes, even in Auckland, episodes of sunshine.
How do you want to share the love of spring with us? Post a photo on our Facebook group: https://www.facebook.com/groups/1116515895074395/ or find a poem ...…
Fiona Hewerdine, Professional Team Leader - Speech and Language Therapy Services BOP Tauranga Hospital, compiled a PowerPoint on how to teach laryngectomees to self-dilate. She has invited us to share her points on this platform. …
Wednesday Weekly is a round-up of head and neck cancer stories from Google Alert. They are collated and introduced by one of our members.
It is obvious cancer affects the famous, infamous and non-famous alike, but it can be a comfort to have a few of those `famous’…
Despite the doctor honorific David Clark does not have a medical degree. He studied German and Theology before going on to complete a PhD on the work of German/New Zealand refugee and Christian existentialist Helmut Rex.
He was ordained as a Presbyterian Minister in 1997. His work history…
John is a member of the Head and Neck Living Well Group run by the Cancer Society's Christchurch Centre. While his cancer is melanoma, the treatments John has experienced are only too familiar to us: radical neck dissection, radiotherapy and skin grafts.
Keytruda is approved for head and neck cancer too but is not yet funded for HNC by the DHBs.
There is an overlap between skin cancers…
Saw this poem in a book, liked the 3 am connection and nabbed it from a blog as indicated below. There's even an analysis. We are not alone. …
This is a story about the Digital Health Workshop held at North Shore Hospital on 30 October. Six of us attended as well as a number of health care workers. Dave deBronkart who is famous in health circles as a strong advocate for a new health care paradigm, is speaking at a number of events in Auckland and elsewhere.
The photo is of Dave, Diana, myself and a Waitemata DHB doctor.…
Weds Weekly is a round-up of HNC stories from the web, contributed by a member. This week there is a story dear to my heart. Should we use mouthwashes with alcohol in them? (Ed.)
If you’re reading this chances are…
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