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March 5 Meeting in Auckland

Our next meeting is at 11.30, 5th March.

Where the place? Domain Lodge, diagonally opposite the hosptial.

We will have time for news, introductions, questions and discussion. Diana will be back and will update you on exciting developments in our network. 

Our speaker, who will address us from 12 to approximately 12.50 am, is one of the advocates from the North Shore Health & Disablity Advocacy Serivice. 

Two years ago, before we had our website,…

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Thinking abut Facebook: Friendly Friday

Diana and I presented a talk to a Regional ORL Meeting in Hamilton yesterday. Our role among the medical experts was to explain how we set up an online support group for their patients. Diana talked about our network in general and I concentrated on Facebook which has been a surprising (to me) player in our success as a support organisation.

While Diana spoke fluently with half a dozen slides, I had to write a speech and read from it trying to eyeball the audience…

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In light of  the NZ government’s recent thumbs down to medical marijuana, lead story today takes a look at the issue from a medical point of view. Expect nothing definitive though.

That’s followed by a piece of promising research and a further (if still needed) plea for HPV vaccination.

Meanwhile:
# Nations can't come together to fight hunger, end oppression, or create lasting peace....but for bobsledding, no problem.
# A boomerang is just a socially anxious…

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Summer Sale! Painted rocks.

All around New Zealand and overseas, people are painting rocks and “hiding” them in parks, walkways and other public places. I saw one at the Auckland Botanic Gardens yesterday.

This is a healthy, arty new outdoor craze that does not involve Pokemon Go or much screen time but instead rocks, stones, paint, sealer and imagination.

When you find them, you replace them with your own painted creations - but put them somewhere else - on top of a ponga trunk is good. The ones you have…

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Grace under Pressure: February Meeting

“Grace under pressure” is what Dr Eric Levi has learned from cancer patients as he has observed them during his career as a head and neck surgeon. Patients teach him how to be a better doctor.

Eric, who is from Melbourne, is completing his third head and neck related fellowship at Starship Hospital after…

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So good to have reports of head and neck support meetings round the country. Here they are from south to north. Please tell me if you know of meetings in other centres. 

NELSON, 2nd February

On Friday we, the Head and Neck branch, Top of the South, had our first meeting of the year. Chaired and organised by Emma Burns.…

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Network News - Monday 5 February 2018

Kia ora whanau,

 

 

6 February is a very special day for New Zealanders. All over the world we are celebrating the signing of the Treaty of Waitangi (te tiriti O Waitangi) in the Bay of Islands on 6 February 1840. It is from across the bay, from the treaty grounds I write this Network News. There is much excitment in the air as we prepare…

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The Cancer Society reviews its resources every few years. Here is the booklet on living with a dry mouth. It is geared at anybody with dry mouth not just post-radiotherapy people.  On pages 18 and 19 it gives a list of products out there to help us. What do you think? Have you tried these products? (An…

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Get help to lift depression: Weds Weekly

A weekly collation of stories from one of our members

That old line about laughter being the best medicine may have some validity according to the lead story.   And, more practically,  it suggests perfectly understandable depression after a diagnosis  should not lead to missing treatment appointments.

The second story is a very up video suggesting advances in robotic surgery means there’s less to be depressed about anyway.

Meanwhile:
#…

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Woolf quote for Friendly Friday

Thursday’s Google Doodle celebrated British literary luminary Virginia Woolf, with a portrait to mark what would have been her 136th birthday. So .... I though I would find an appropriate quotation.

Hope this means what I think it means ... that there's camaraderie in misfortune. …

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Speakers' Programme 2018

Working on it! Now have most speakers set in place and Tuesdays evening meetings shaping up. Have invited speakers for them.

This is a new move for @HeadNeckNZ. An attempt to allow people who work during the day to attend our meetings. 

We will do our best to keep to this programme and yet keep one or two slots open for any ideas that you have. …

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North and South's series on Keytruda

It's worth getting your hands on copies of the last two North and South magazines (Jan/Feb). Veteran journalist Donna Chisholm investigates the latest immunotherpy drugs, Pharmac, and the effect of non-supply of cutting edge drugs on New Zealanders with cancer.

In January's issue, HNC was mentioned. In February's it is more about melanoma and funding formulae. The third part will be in March. North and South does not have an online version but articles are sometimes published on…

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Auckland Meeting Dates

I'm trying to get the Auckland meetings sorted for the year. Speakers are listed in a previous post but here is some firmed-up information on the dates, including the two evening meetings. 

Times are there. Remember the 11.30 am start for daytime meetings and 6.00 pm start for the two evening meetings. All laid out in the file below which I will place in waiting rooms around Auckland. …

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What are our values? Friendly Friday.

When we became an incorporated society in mid-2016, we had to document our aims and values etc. We often talk about our aims: to connect, support and advocate. What about our values? Written by Diana in the first rush to incorporation, they are that we should be engaged, respectful, informed and caring. 

Now that we are 10 months down the track, it is time that we take another look at our values, break them down, perhaps change them. A poll on the committee page showed the…

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More on oral care products and Oral 7

There's some confusion in our head and neck cancer universe about the best regimen for oral care.

In many parts of the world, fluoride trays are used but not so much in New Zealand. Only one of our members has the trays, given to her by the Otago Dental School.

In most parts of NZ, we are advised to use Colgate Neutrafluor 5000 toothpaste, the toothpaste with the most fluoride. I believe "neutral" fluoride is a type that doesn't stain the teeth. We're not advised about…

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