Our Facebook Group Head & Neck Cancer Support

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New support forum

 

We have updated our forum. Because 99% of our discussion is in our closed Facebook group, the forum has never really taken off apart from with a very small number of people, mainly committee members. Some of us are experienced users of online cancer forums like the Oral Cancer Foundation and Mayo Clinic Connect but we have reluctantly* conceded…

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Along with `quit alcohol and smoking and lose weight’ the line `exercise more’ is pretty much standard medical advice. However, the lead story notes that there may be more to the`exercise more’ than simply to make everyone feel guilty.

Second story re-emphasises the need for good dental hygiene.

Meanwhile
#…

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Network News 16 April 2018

Kia ora whanau,

 

Our Network - update
In May we are holding our Annual General Meeting to report on the activity of the Network over the last year, and to elect officers for the 2018/9 year. We will send out through our usual channels our Annual Report, and an invitation to attend our AGM. This year we intend to broadcast our meeting using Zoom. You can access our AGM meeting from here.  …

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After intense treatment for head and neck cancer Sean Woods packed up his old life and went on the road in a gypsy caravan selling his tie dyed products, mostly t-shirts. This means he can meet up with other members in clinics and meetings and gyspy fairs around the country. 

Here he is in Palmerston North with Gypzee Kerry.…

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New Zealand nurses are currently agitating for a pay rise with many maintaining the general public is only partly aware of how important their role is.  Lead story this week then is about how nurses can help head and neck survivors post-surgery.

Second story is a bit more technical – about identifying types of cancer in order to…

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Become a member, please

Around the corner on May 7th is our AGM. We hold it in Auckland where we started, but it is an annual general meeting for all our members throughout New Zealand. 

We'll do our best to live stream it but we need non-Auckland members to vote by proxy. We'll send you a form. 

As we are an incorporated society, we have certain rules to adhere to. One is that every old member has to enrol again. And you have to be registered…

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Meetings Update

Meetings are taking place all around New Zealand. We will update you on the Palmerston North, Nelson and Invercargill meetings in due course. Meanwhile, here is a summary of two recent NZ meetings. 

Christchurch Head and Neck Living Well Group 5th April Meeting

Swallowing and Voice Issues

Last Thursday Christchurch held its 6 weekly meeting with a large gathering of 15 patients and caregivers in attendance. An interesting and informative…

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One of the first thoughts that ran through my head when I got cancer was that it was my fault. I’d been too stressed for too long and now my body had failed me. I’d let my immune system get too weak.

I now think that is wrong, wrong, wrong. Cancer is caused by random cell mutations that take place over decades. There are risk factors, yes, but there’s also a lot of plain bad luck. The immune system can’t protect you from most cancers because cancer evades the normal defences of the…

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With the increasing number and variations of cancer treatments (and the number of identifiable cancers)  finding the right one can be a challenge, but more work is now underway to help ensure a correct fit – as the lead story explains.

And while head and neck cancers are often blamed on smoking, alcohol or HPV infection some…

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Network News - 2 April 2018

Kia ora whanau,

We are one quarter of the way through the year. We hope you have had an enjoyable break over the holiday period. The summer seems to be never ending, and we hope you are enjoying the good weather. 

Recently, a number of our members have shared their stories of head and neck cancer. Three of those stories are highlighted in our most populare posts. Links are below. I highly recommend each of the stories for their unique perspectives of head and neck cancer…

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Open Survey Results

The Network Open Survey opened for patient, carer, & family/whanau feedback on 3 March 2018. To date 19 people completed the survey.  This question asks patients+ to give their opinion as to how satisfied they are with various aspects of the head and neck cancer service in New Zealand. The questions are based on the requirements of the National Standards for Head and Neck Cancer 2013 (Draft).These percentages are the total of patients+ who reported they were satisfied or highly satisfied…
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Cancer diagnosis and treatment can be a pretty bleak time and any help will be appreciated. That help can come in the form of a pet - and the (usually) relentless positivity and enthusiasm of a dog is one of the best – as this week’s lead story suggests.

The second story outlines some of the areas that a…

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Happy with your treatment experience?

Please share your thoughts on your recent treatment experience. This can be at any stage of your cancer journey, pre treatment, treatment, post treatment, and survivorship. 

You can take our survey as many times as you like, and we encourage you to have your family/whanau and carers share their thoughts as well. Click the link to share your thoughts.

https://www.surveymonkey.com/r/PatientNZ

 

 

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