Head and Neck Cancer Support Network Head and Neck Cancer Support Network

Piecing Us Together Again

"In our community, we face a profound gap in the care journey for those recovering from Head and Neck Cancer. Many patients who undergo life-saving treatments are left with disfiguring side effects, yet there is no reliable or affordable path to access facial prosthetics or oral rehabilitation. These services are essential to restoring dignity, function, and quality of life. The lack of survivorship care leaves many to navigate life with physical and emotional burdens that are entirely preventable. It's unacceptable that individuals who have survived cancer are left without the support to truly reclaim their lives."

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Head and Neck Cancer Support Network Head and Neck Cancer Support Network

Navigating the Rapids: Life After Head and Neck Cancer

As we approach World Cancer Survivors Day on June 4th, it's essential to recognise the unique journey of survivors of head and neck cancer. For many, survival is not the end of the story but the beginning of a new chapter filled with its own set of challenges and triumphs. As we come together as the Heads and Neck Cancer Support Network, it's crucial to shed light on the realities faced by survivors in our community.

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Head and Neck Cancer Support Network Head and Neck Cancer Support Network

Join Us in Supporting Cancer Patients: Help Us Print Patient Planners and Information Brochures

One of the essential tools we offer to cancer patients is our patient planners. These planners serve as invaluable resources, aiding patients in organising their appointments, medications, and important contacts amidst the whirlwind of treatments and consultations. They are not just notebooks; they are lifelines, offering structure and support during what can often feel like an overwhelming journey.

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Head and Neck Cancer Support Network Head and Neck Cancer Support Network

Researchers discover urine-based tests to detect head and neck cancer

Researchers from the University of Michigan Health Rogel Cancer Center have created a urine-based test that detects pieces of DNA fragments released by head and neck tumors. The test could potentially facilitate early detection of this cancer type, which currently does not have a reliable screening method.

Human papillomavirus (HPV) is widely recognized for causing cervical cancer but is increasingly found to cause cancers in the mouth, throat and other head and neck regions.

Early detection is critical because detecting a cancer at an earlier stage can lead to better outcomes for patients.

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Head and Neck Cancer Support Network Head and Neck Cancer Support Network

Guiding Light: New Advances in Sinonasal Cancer Treatment

This article explores the importance of integrating innovative treatment modalities and leveraging advancements in precision medicine to optimise patient outcomes in managing sinonasal cancers. The multifaceted approach discussed underscores the evolving nature of cancer treatment and the promise it holds for improving patient care in this challenging clinical landscape.

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Head and Neck Cancer Support Network Head and Neck Cancer Support Network

Illuminating Health: The Lighthouse of Oral Health Shines its Spotlight on Whole-Body Wellness

In the bustling landscape of healthcare, the connection between dentistry and medicine marks a pivotal era. Long perceived as separate domains, oral health and systemic wellness are now recognized as deeply intertwined facets of overall health. A recent anecdote shared by dentist James Mancini sheds light on the profound impact of this integration: during a routine dental examination, Mancini’s observation of abnormal gum health led to the early diagnosis of leukaemia in his patient, Bob. This instance underscores the vital connection between oral health and whole-body well-being.

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Head and Neck Cancer Support Network Head and Neck Cancer Support Network

Empowering Hope: Breakthrough Treatment Shows Promise in Head and Neck Cancer

In a significant leap forward for patients battling locoregionally recurrent/metastatic head and neck cancer, a groundbreaking combination of iopofosine I 131 (CLR 131) and external beam radiation therapy (EBRT) has demonstrated remarkable success. The results from an investigator-initiated phase 1 trial (NCT04105543), presented at the 2024 Multidisciplinary Head and Neck Cancers Symposium, revealed a 64% complete remission rate and promising overall response rates. This pioneering approach, spearheaded by Cellectar Biosciences, opens new doors for cancer treatment and offers hope to those facing this challenging diagnosis.

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Head and Neck Cancer Support Network Head and Neck Cancer Support Network

Spotlighting Awareness: Navigating the Link Between HPV and Head and Neck Cancer

In the week ahead, including 29 February 2024, there will be a strong national focus on people living with Rare Disorders in New Zealand. It is a good time to reflect on what the government can do to support those affected. While health funding is under constant pressure, there are options for greater collaboration, management of knowledge, patient support, and patient workflow using technology. For ideas on healthcare innovation, refer to this link.

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Head and Neck Cancer Support Network Head and Neck Cancer Support Network

Guiding Light: Help for Head and Neckers Navigating the Challenges of Rare Disorders in Aotearoa New Zealand

In the week ahead, including 29 February 2024, there will be a strong national focus on people living with Rare Disorders in New Zealand. It is a good time to reflect on what the government can do to support those affected. While health funding is under constant pressure, there are options for greater collaboration, management of knowledge, patient support, and patient workflow using technology. For ideas on healthcare innovation, refer to this link.

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Head and Neck Cancer Support Network Head and Neck Cancer Support Network

Lighting the Way to Navigate the Unique Challenges of Rare Disorders in New Zealand

Recognising and addressing the relationship between rare disorders and head and neck cancer is crucial for raising awareness, tailoring treatment approaches, driving research advancements, influencing policies, and fostering a supportive community for individuals facing these unique health challenges in New Zealand.

We are proud of Head and Neck Cancer Support Network’s involvement across Rare Disorders Month which takes place throughout March. #GlowUpShowUp #DoRightByRare #RareDisordersMonth

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Head and Neck Cancer Support Network Head and Neck Cancer Support Network

Closing the Care Gap: Ensuring Every Kiwi Can Thrive Beyond Head and Neck Cancer

In Aotearoa New Zealand, every life is precious, and every Kiwi deserves the chance to thrive beyond the challenges of head and neck cancer. Closing the care gap is not just a vision; it is a mission that requires collective effort. Together, let us champion the cause, so that no matter where you live, it does not determine if you live. The journey towards comprehensive healthcare for all is an ongoing one, and with our shared commitment, we can make a profound impact on the lives of those affected by head and neck cancer. Please support us in our advocacy work.

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Find out what our community are doing over the next few months. Click the button to see our upcoming events.